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Here are some suggested organisations that offer expert advice on special needs.

No diagnosis and challenging

2 replies

Tired45 · 11/09/2021 16:47

Hello, just looking for some virtual support I guess. I’m really struggling atm. My 7 year has not had any diagnosis but has an EHCP snd is being managed as if he has SEN (specifically ASD) by his school. His behaviour is challenging and I am a full time working lone parent. He has no contact with his dad and I do not have any family support. I have an older child who has SEN who is in residential care and life has been hard at times especially seeing others with their NT children. I’ve very few friends, I have no social life, all I do is work. I’ve nothing positive to contribute to conversations snd am finding myself becoming more reclusive and anxious on the few occasions I take my child out. I had a difficult time with my eldest, lots of judgement from other parents and a lack of awareness and understanding of ASD/ADHD/ODD 20 years ago (my eldest is now an adult). My youngest presents differently to my eldest and I recognise he is different to his peers but not necessarily ASD (I’m thinking more ADHD/dyslexic). Today I sent him to a local children’s play club as I had worked last night so this allowed me to get a bit of sleep (I have a NT 19 year who helps a lot with looking after his youngest sibling). The play club is inclusive and my child attends regularly so is well known to staff. On collecting I was advised of an incident and whilst it was addressed tactfully it has just left me shattered (emotionally). I am so tired of being a mum atm. I am lonely and just feel so sad for my child(ren) and just wish he did not have these difficulties. My eldest has no friends and I just feel like things are starting to follow a similar pattern with my youngest. I’m sorry for the long waffle post, I’m just struggling and feel so alone.

OP posts:
overworkedrobot · 11/09/2021 19:57

Have you had social care assessments? A carer's assessment for you and your 19y/o, an assessment by the disabled children's team for DS and an assessment by adult social care for DC1.

undertheshadow · 11/09/2021 23:14

Don't give up on being a mum. You are doing a good job

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