Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Is it autism or glue ear ? 3 years old

11 replies

Newmomma2705 · 22/07/2021 11:53

So I have posted here before worries about my daughter and had loads of help. I know mumsnet can't diagnose her I'm just so confused because for 18 months I've been convinced she is autistic. She is now 3.1years and started seeing professionals now as although she was referred to SALT and a comm pead everything was over zoom /telephone and didn't really get anywhere.

My DD had bilateral glue ear diagnosed first in Feb 2020. I thought nothing of it. She had a repeat hearing test march 2021 again biateral glue ear & they said this time she had hearing loss she couldn't hear under 50 decibel. Fast forward to June 2021 she was seen by ENT bilateral glue ear - had grommets inserted. She was ill post grommets but still in 3 weeks we have 15 new words (she was non- verbal pre grommets)

She was seen by SALT face to face for the first time yesterday who has been looking into referring her for an autism assessment. However now she's seen her she says she feels as though she is presenting with an 18 month delay due to hearing not autism ? As her joint attention is good, her eye contact is fleeting but uses it for communicative purposes, her play skills are behind but ok. And she has gained words since the grommets and they seem to be typical first words. WHATTTTT???! I am so confused. She pointed to request at 23 months but with a lot of effort didn't point to show something interesting till closer to 3 ??! I spoke to the speech therapist about this but still saying it's glue ear related. Can this be ???!
Anyone had similiar ?

OP posts:
Newmomma2705 · 22/07/2021 19:48

Bump anyone?

OP posts:
Orchidflower1 · 23/07/2021 14:48

What has her own Hv said?

Newmomma2705 · 23/07/2021 16:39

Never met her, did her 27 month check over the phone because I said I had concerns and referred her to SALT and never heard from her again x

OP posts:
INeedtobealone · 24/07/2021 07:59

My DS is 5 and at 18 months had a speech regression. This followed two very heavy colds and we arranged a private hearing test and was diagnosed with glue ear at 20 months. We had another hearing test when he was about 24 months where we were told the glue ear had resolved itself.

6 months later, at 2.5 years, he was referred for autism assessment. His social skills were poor,, couldn't flow any instructions, still not talking. We started to get single words about 3, and two words together about 3.5. We spent 18 months paying for private SALT and she introduced him to PECS.

He got an EHCP and started school in September at a speech and language resource base in a mainstream primary. He's absolutely flown, talks all the time now, made friends, academics age appropriate and loves school.

His speech is still about 12 months behind his age, and still is slightly behind in his social skills but the gap is significantly reducing.

We are still waiting for ASD assessment, but I don't think he'll get a diagnosis now. At 2.5 I was convinced he was and we had a private paed willing to diagnose him.

Whether he had intermittent glue ear for most of his toddler hood, 'just' a speech delay, the SALT at his school doesn't think he has a developmental language disorder, or something else yet to be diagnosed? But all the things that had me convinced 2.5 years ago that he would get an ASD diagnosis no longer exist.

It does feel like a bit of a mystery.

Springmama · 18/01/2022 04:23

@Newmomma2705 wondering if you could update how is your DC doing? I have the same concerns about my DS re pointing& he also has an ongoing glue ear( no grommets yet) which is probably mostly impacting his communication & behaviour too( but we still don't know) many thanks

CK1988 · 27/08/2022 07:21

@Newmomma2705 i could have written that post! My DD is 2.4 and is about 18 months behind with communication, she is so far behind its worrying me so much
she had grommets in just before she turned 2 but the foundation skills for communication had not developed (she is also very physically capable usually gets herself whatever she wants)
@INeedtobealone could you advise what was the ‘trigger’ for getting your child to talk? How did you go from no understanding of words to understanding and then talking?
in the past 7 weeks we have worked on joint attention, i feel the world is opening up for her…she now looks at dogs, cats, other kids, interacts better, uses eye contact to share enjoyment etc
DD doesnt point and barely waves…she is very happy amd engaged with is though…i dont know if she just skipped this part of development or is just delayed…its such a worry, i just want to flash forward a year and know where we will be…

Newmomma2705 · 27/08/2022 20:08

@CK1988 my daughter is doing so well now! 3 or 4 word sentances and definitely wouldn't get an autism diagnosis. She did start speaking post grommets however with the communication PECS definitely helped. We didn't do the whole thing properly more like just using the pictures to exchange but this 100% made her realise communicating could get her things and it was fun to communicate with us. Xx

OP posts:
CK1988 · 27/08/2022 20:15

@Newmomma2705 wow thats amazing, thank you for posting! I hope i can be in your position this time next year and sharing with anyone who needs it

im baffled at how little info (andecdotal or evidence based) there is online about glue ear and communication delay…hopefully these posts can help someone!

going to give PECS a try this week! xx

Newmomma2705 · 27/08/2022 20:27

@ck1988 yes I do think my daughter has a language disorder but she is not long 4 and they won't look until 5. But it doesn't affect her now. She communicates clearly and to everyone she is a totally different child to what she was. Pecs definitely 100% helped us and I hope it helps you to. We just did stage 1 and 2 I think it helped with understanding and communicating. We used simple things she really really really wanted so was motivated choc buttons and things like that she picked it up so so quickly. Sometimes now when she doesn't understand everything I show her a pic and she then links the word to the picture. Good luck! Xx

OP posts:
CK1988 · 29/08/2022 10:27

@Newmomma2705 thanks for the reply and it sounds like things have gone really well for your daughter!
There are so many language delays/disorders out there and hearing loss seems to be glossed over a lot....and it seems so many professionals seem to want to label a child (as asd) straight away without considering their capabilities or allowing time, hard work and development to take place..
Thrive by 5 is my new motto!
Good luck with everything! xx

ToddlerMumma21 · 08/03/2024 19:34

hi! Just wondered how your children are all doing now?

New posts on this thread. Refresh page