Im absolutely distraught, Paed has retracted dd,s dx

[jenk1]

he has just phoned me to say upon reading dd,s notes he sees that other professionals do not see ANY evidence of an ASD and that having spoken to the ed psych she doesnt think dd has ASD either.
so i said well what about what we are telling
you, do you think we are making it up and he said no im not saying that, but she needs more monitoring from the other hospital.

how unprofessional is he?

i dont know what to do

Oh Jenk

NAS?

just out of interest jenk, what are her main symptoms???

You don't have a lot of luck with dx do you Jenk?

Jenk thats awful! Im not surpised your distaught - what a terrible thing for him to do to you and you DD.

Oh god thats awful jenk

How can he dx her with ASD one day and retract it the next. I'm not surprised you are distraught.

I cannot believe the unprofessionalism!! I know that sometimes they waver because to be dxed ASD you have to have qualities from all three of the triad of impairments - eg speech problems of some sort, either delayed or slighly automatic; repetitive or obsessive play/repetitive gestures and lack of imaginative play; and social problems. With my DS, he was borderline on one of the three impairments, but that still makes him ASD. Maybe your DD is not showing symptoms from all three, which might make her atypical. But they still should get it right first time, rather than put you through all this!!! Big hugs!

Ring him back and ask if she's cured then. And if she isn't, what the f*ck does she have?
I
I'm sorry your doc is a moron

ive calmed down a little now, ive phoned dh and told him and he said right we are taking this further.

they cannot dx her one day with an asd and withdraw it on the basis of a telephone conversation with the LEA ed psych, what about us-our concerns and the private psych and their own asessment which concluded that she was showing signs of an asd?

he actually said to me on the phone for a child to be dx,d as ASD they HAVE to be showing signs of it at school, so i said i disagree with you there, our son was not showing signs of ASD at school yet he was still dx,d with AS.

Im so angry, we are writing the biggest complaint letter ever to the boss of the hospital trust.

that is not true about showing it at school - you won't read that anywhere on the definitions I've read for ASD. Are they hedging their bets because don't want to pya up on a statement?? It's usually about money in the end! Good luck

It's ana cknowledged fact that some ASD children (the NAS will provide woritten conformation on their fact sheets, I know because I used it with Sam!) cope at school but then transfer those issues home with added depth as a result of the stresses of just functioning (sam is a bugger for this, now he's 'settled' at school he's a bloody demon home here again) She's almost got the criteria for ADHD and ASD mixed up, are you sure you saw a Paed and not a cleaner

Sorry you've got his crap again- it goes from one nightmare to another doesn't it?

peachy do u have a link where i can get those sheets, cos i will send them in with my whopping big complaint letter.

I got them by calling the NAS helpline- they sent me a pile of bumf. Can you give them a ring tomorrow?

yes will do

Blimey, sorry to hear you and your family have had to put up with this appalling treatment.

Didn't he read her notes yesterday before he gave the dx??????

Oh jenk, that is just awful - so sorry to hear about it

bl**dy hell. Very sorry to hear this.

Message withdrawn

Go through the DSM IV criteria for autistic disorder, atypical autism (pdd-nos) and Aspergers. Write down how your dd fits onto the spectrum in your eyes. Cite examples. Present it to the paed and ask him to explain why he feels she doesn't fit on the spectrum.

im having trouble accessing the DSM IV criteria for dx,ing can anyone tell me or provide a link?

TIA

Have a look here

This ones good too here

thanks dusty and sarah for those, tomorrow ill be going through them with a fine tooth comb.

i phoned the NAS today and told the lady what had happened, she was very shocked.

she said she had not come across a paed retracting his dx before, maybe amending but not retracting, she suggested i got onto the NHS complaints dept straightaway, which we are going to do.

she said to ask for a second opinion, i told her we were being referred to another hospital but that the ed psych who vehemently disagrees with the paed works for the lea and nhs borough that this hospital comes under and that we dont expect favourable treatment.
so she gave me the name of an expert who specialises in diagnosing developmental disorders and its the same pscy who dx,d DS!!!!!!!!

she said maybe you will be better with him and i think we will be, we will have to pay for his services but he really helped us in fighting the LEA so DH wants him to come and asess dd.

of course we will have the battle from the LEA where they refuse to accept his dx but having just had the LEA back down before the tribunal scheduled for this week and put the private dx on ds,s statement we know we can win this one.

There is going to be a very strongly worded complaint letter going to the executive chief of the NHS trust that this paed comes under though.

You must be exhausted with the constant battle to get your children the help they need. It puts my probelms with ds into perspective. I don't know how you manage it but your children are very lucky to have you