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Ds2 said he'd be better off dead

4 replies

weebleswobblemoreonboxingday · 21/11/2007 20:58

Ds2, 11, said he'd be better off dead when he came home from school today. I think he's overwhelmed by impending tests and surgery. He's having impressions taken by the orthodontist on Friday, 2 teeth out next week, a barium meal the week after that, and depending on the results he could be having some bowel removed (crohn's). He's also having a SALT assessment in mid December - he's dyspraxic.

I tried to get him to focus on how long he's felt well for since his crohn's diagnosis a year ago and that there will be times, hopefully shortlived, when he doesn't feel great and may need tests that are unpleasant, but the periods of wellbeing inbetween are something to be positive about.

I'm going to ring his IBD Nurse tomorrow to see if there is some kind of counselling service at the hospital. I'm not likely to hear back from her before next week, so on the off chance that someone else might have to deal with their child having these thoughts, I'm wondering how you deal with this.

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shrooms · 21/11/2007 21:06

Poor man! Perhaps you could take hom out for a special day or something (museum/cinema ect) and make him feel well loved although I'm sure you do already. I suppose children need something to look forward to sometimes and all of these things aren't exactly that! Perhaps a treat would just break up the ongoing appt. ect a bit and make things more tolerable

Skipsmum · 21/11/2007 21:17

I really feel for you. DS2 has periods like this (crohns, asd, and now CP) and his little life seems to be filled with tests, appointments and pain. All these tend to come in clusters - appointment=stress=pain=more appointments. DS likes to choose a film and snuggle up on the sofa with a lolly and a blanket. Its something he enjoys that doesn't take him much energy. It is hard to make him see he needs all these appointments though.

Skipsmum · 21/11/2007 21:18

Sorry, I haven't really given any advice, just waffled at you

weebleswobblemoreonboxingday · 21/11/2007 21:24

The special day is a good idea shrooms. I'm think doing this after the barium will give him something lovely to look forward to.

Skipsmum - How old was your ds2 when diagnosed?

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