She didn’t start smiling till she was 6 weeks old, she had her first giggle at 8 weeks. But she is very chilled herself. Very content. She doesn’t often cry. But she can cry. I see people say they don’t cry due to the low tone. But she’s had a set of lungs on her the minute after she was born.
We did a lot of tummy time on us as she wouldn’t tolerate it on the floor with the pillow underneath her, she still hates tummy time to this day. We still do it daily to improve her muscles, and also side laying.
She holds her head for long periods but sometimes she gets lazy, it’s the low tone they get exhausted faster.
My girl didn’t have low tone in her arms and legs it was only central such as neck/back
But in her first week she didn’t move much at all. Don’t worry your little girl will get there. Each child with pws is different.
All the specialist have told us our girl is developing well, she just has a slight psychical delay. So we have pyhsio every 3 weeks until she’s abit older and then it’ll become more regular.
We also see speach and language, we have portal support, and we see the endo in September for Growth hormones. Which is a game changer for pws kiddos, helps the muscle mass and cognitive development.