Health care plan

[Scorpion27]

Hi guys...

I have a 6yr old who has a feeding disorder called ARFID (avoidant restrictive food intake disorder and also has 16p 11.2 microdeletion.. hypermobility.. he was tube fed for first 3 and half years of his life..

Should be on a health care plan?
Do his diagnosis come under Medical Conditions?
School saying no to both..

Any help/advice would be appreciated please?
TIA xx

There's a similar thread here.

Yes, they are classed as medical conditions.

Are the school saying DS doesn't need an education, health and care plan or an individual health care plan? Or both?

DS should have an Individual Health Care Plan if his conditions mean he needs support managing his conditions whilst at school. Not everyone with medical conditions needs an Individual Health Care Plan.

Not everyone with DS's diagnoses needs an EHCP, but if the school refuse to apply for an EHCP and you think one is needed you can apply yourself.

With His feeding disorder he should be allowed to eat snd drink what he does, children hv milk snd he feels left out so asked me if could take his chocolate milk drink as that's only way I can get milk into him, school said he is not allowed too..
His chromosome impacts on development delay emotional and mental health he started walking late didn't really crawl used to bum shuffle, speech wasn't until he was 3 and still babbled until he was 5 now he still is delayed abit in development understanding registering things, and gets words muddled up.. academically he is progressing hates writing reading is good..
because of his feeding disorder I don't know if should still be on a health care plan..

What do you/school mean by a health care plan? An individual health care plan or an education, health and care plan? It sounds like DS should have an individual health care plan at least, and school should be making reasonable adjustments. Perhaps read your previous thread which has some good advice.

Support needed isn’t based on diagnosis it is based on need.

What support is he being offered in school? What support do you think he needs above what he is getting.

Individual Health care plan..
he don't get no support in school...
Will be having assessments for asd/adhd..
He is not allowed to take his chocolate milk drink (only way I can get milk into him)

Can he not have his chocolate milk at home? As long as he is having some fluid at school then I don’t see why it needs to be chocolate milk.

(Ds hasn’t had any milk based products orally since 18 months, the only reason he gets some now is via tube)

If you think the school isn't supporting DS's needs why don't you move him? Independent schools aren't always supportive of pupils with SEN, and when they are parents usually have to pay for the additional support. Or apply for an EHCP yourself.

Does DS's paed believe DS needs an individual health care plan? If so, it is rather remiss of them not to organise it if no-one else is. Realistically, an individual health care plan isn't going to change much if DS doesn't need medication, treatment or monitoring during school hours. SEN provision is generally considered separately.

Sirzy is right, focus on DS' needs, not diagnoses.

He wanted to take it because rest of the children hv milk at snack time and he doesn't drink milk (used to be tube fed) that's why!
And He is monitored at lunch so they know what's he's eaten and how much ( he only has half jcket and doesn't eat eat it all) same everyday..or cheese sandwich..
Will be having physio first hypermobility occupational therapist and has speech and language too..

Him wanting to take it and needing to take it are two different things though. Every school I have worked in has a number of children who don’t have the school milk for whatever reason so just have their water instead.

Yes it's two different things but when the rest of the class are having milk and my 6 year not knowing why he can't drink it.. (he wants too but can't).. so u can imagine how it looks to him..
Having only few things that he eats drinks as those are his safe foods...!!

Can you send a packed lunch instead? Some of the support you mention wouldn't be included in an individual health care plan, that would be an IEP instead.

Just apply for an EHCP yourself &/or move to a state school which on the whole generally have a better reputation for SEN support in comparison with independent schools. You are clearly not happy so why continue to pay to send him to a school you don't believe meets his needs?

I am assuming you have given him the chance to try the school milk? Him wanting to drink it is a massive step in itself for a child with arfid so it may be worth gently opening up that option?

What is an IEP? I don't pay for him to go to private school.. he's not in a private school..

He's tried the milk which was a massive step for him massive took a sip too then said no I don't want it..
With him having ARFID that was massive to do snd try the milk.. x

An IEP is an individual education plan.

I assumed it was an independent school because that's what was posted on the other thread. I assumed the other thread I linked to was yours since it would be a huge coincidence you posted this thread when someone else with a child with ARFID and a chromosome deletion posted a similar thread with the same writing style recently.

Bum shufflers are apt to receive dyslexia diagnoses. I have several relatives who butt scooted and were diagnosed with dyslexia as young as 6.