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How to tell a very anxious DD8 with health anxiety that she has ASD

3 replies

Lalaland50 · 23/04/2021 13:42

Hi there, we've just received an ASD diagnosis for my DD8 (high-functioning/ at mainstream school). I wondered if there were any books etc that I could get to help her understand. Or any advice from anyone with experience. She has health anxiety, so I feel like I have to tread carefully.
Thanks

OP posts:
TheVolturi · 23/04/2021 14:44

That video was recommended to me when my 8 year old was diagnosed.

Lalaland50 · 23/04/2021 14:55

That's lovely, thanks very much.

OP posts:
Dolphintrainer · 24/04/2021 07:45

My DS8 was diagnosed with ASD and anxiety in Feb. I used the video suggested below first of all, after he’d had a meltdown. We sat and watched it together and at the end he asked “Do you think I have this?” I asked him what he thought and he was able to nod and say he feels some things the same as the video. He then wanted to watch it again. That was right at the end of the assessment process and within 2 weeks we had the diagnosis. I took a good week to process it myself then we sat and talked again, just when it felt the right moment. I really worried how to tell him and had had sleepless nights over that. But actually on the Saturday it just seemed the right moment as my husband and I were with him with his siblings were occupied elsewhere and it felt right. So I started with asking if he remembered the video and that he wanted us to find out for sure. He said yes. And I said that I had now spoken to the specialist Dr and yes, he is autistic. I explained more but most of all I explained that it meant me and Daddy had to learn more about how to do things better for him and that we would change some things at home to make it easier for him. One of those things is that I would stop telling him off when he interrupted me talking to someone else, which was a long standing issue that he had never been able to get his head around and was such a frustration to me. He was so relieved and happy that he would no longer be told off for that, and liked the idea Dad and I would be learning lots, and that there was a reason he struggled with some things so much. And I have to say since we have had that conversation, plus more, things have been great. We outwardly make it no big deal in the family (though it obviously is for my husband and I; we are getting up to speed to be the best parents we can be for him) It’s an ongoing topic, like - “you are so good at that I think because of your autism”. He is feeling quite secure about it.
I recommend this ice-cream sundae analogy book to help your DD as time goes on, and the other book is one of the few written specifically for parents of the recently diagnosed, which helped me.

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