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Here are some suggested organisations that offer expert advice on special needs.

Sorry.

12 replies

mm22bys · 04/11/2007 10:29

Sorry for last night's post. We all have worries and I shouldn't have belittled someone else. It won't happen again.

OP posts:
GunpowderDragonsAndSoup · 04/11/2007 10:33

I don't think you need to apologise. I think everyone feels that when someone else has a worry they see as trivial compared to their own - I know I do. You just made voiced it in public.

AitchTwoOh · 04/11/2007 10:38

agree with soupy. don't worry.

why has special needs gone back into active convos, was there a discussion? shouldn't we re-instate the tick box in the customise section and have 'opted-out' as the default. with an explanation of why, naturally.

2shoeswhizzbangwoosh · 04/11/2007 11:01

mm22bys. don't apologise. we have all been there and I for one understood what you were saying. I didn't think you were belittling anyones concerns.
and aitch no there was no discussion it just went when the new set up happened.

GunpowderDragonsAndSoup · 04/11/2007 11:03

I@m sure if you contacted MNHQ they'd switch the default.

Weren't there some complaints recently abuot the "exclude SN" box at the top though??

Blandmum · 04/11/2007 11:03

agree with soupy. Every feels like you did sometimes. It is only human

AitchTwoOh · 04/11/2007 11:12

well i can understand the complaints, it does give out a weird signal i think. but there's room on the customisation pages to say 'we had a discussion about this and here's what we do' in a way that will seem reasonable imo.

GunpowderTreasonAndSquonk · 04/11/2007 11:13

Just wanted to add my voice to everyone else's - there's no need to apologise to us. Not sure whether the "exclude sn" box is a good idea.

Isn't it another kind of segregation? and isn't last night's kind of thread JUST what we need so that we all understand what others are going through on a day to day basis?

yurt1 · 04/11/2007 12:06

mm22bys- do find yourself a 'closed' SN support group (either RL, friends or more official, or online -timetorant for example). It is important that you have a safe place to express this sort of thing.

I would go mad if I didn't have my daily phone call with a friend in a similar situation- and we do spend a lot of time saying 'people have no idea', and I think it keeps us both sane, and is somewhere to offload that safetly.

needmorecoffee · 04/11/2007 13:46

mm22bys. You just said what we've all said and have felt in the past. Gawds, I've ranted on about it in my dd's blog. Its a valid feeling and it does pass. Most of us go through grieving and anger and hurt when we geta SN dx. I couldn't undertsand how the world kept going when we were told dd had brain damage. All those poeple laughing and shopping. Didn't they know? Couldn't they see? And for a time I resented and hated the whole world.
If I'd known about MN then I'd probably have posted about it too.
Pick the supportive comments and ignore the bad.

mymatemax · 04/11/2007 14:50

No need for an apology, I know exactly how you feel.

ShinyHappyRocketsGoingBANG · 04/11/2007 16:41

I know you felt too but can see things from both sides. Whilst I mentally sigh and other people's "problems" and sometimes think unfair thoughts like "Ha! they should have DS for a day.. that would bring it all into perspective..!"... on the other hand, if I was to have another baby tomorrow I too might worry about exactly was the OP on the other thread was worrying about. I blame the bloody centile charts and milestones that are published everywhere.. they make you (or some of us!) panic if our children are not conforming even though often there IS nothing to worry about!

And it isn't just because I now have an SN child; I was the same with my first. I panicked and panicked about he constant hunger and runny poos and non weight gain.. and was constantly told it was all "normal" and comments were made, in front of me but not to me about "these young mothers" who are either a, uninformed or b. not feeding their babies properly (I bristled at that one.. I was keeping charts and everything!).. and then he turned out to have CF!

Blu · 04/11/2007 17:47

well, I think it's possible to feel sympathy or have some empathy with whatever anyone else (or even yourself) is having a momentary worry about, whist feeling wistful that you wish that your worries could be less all-consuming, both at the same time.

MN is full of people worrying about what handbag, shoes, or face moisturiser to get, some of them will be facing serious life issues, none of us think that that is the be all and end all of their understanding of human endurance.

Worry not, mm22byss.

I post in SN sometimes when I have an issue about DS's leg - I know full well that my worries and practical problems with that are way way less all-encompassing, and not remotely comparable in terms of long term impact or relentlessness as the things other parents are dealing with - and if I know that I'd be mad to think that the other parents didn't know it, but I also know that it isn't a reason for me not to ask for experience and expertise from other parents with leg-related issues! But i suppose I might feel a bit exposed if someone particularly referred to one of my threads. Which is why it's sweet of you to apologise, I think.

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