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Wouldn't you think that at a firework display......

16 replies

yurt1 · 03/11/2007 20:19

people might be more interested in the fireworks than gawping at an autistic kid. Yes he yelps, yes he shouts, yes he needs 2 people to hold onto him, yes we're leaving, so why blody gawp?

Grrr.

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Blandmum · 03/11/2007 20:22

Oh ffs yurt1!

Other than the fact that he is bloody stunningly good looking, the fireworks would be more of a draw!

This is the first year that ds has been able to ope with the fireworks while being outside. And no vomiting this year, which is always a plus.

Blu · 03/11/2007 20:22

Grrrr.

beroWHEEEEEEEEna · 03/11/2007 20:22

Grrrrr on your behalf, and a FFS for good measure. Sorry you didn't have a good night (or maybe you did until people felt the need to gawp?)

beroWHEEEEEEEEna · 03/11/2007 20:23

(oh, sorry about the firework name - not really appeopriate to the thread - or mybe too appropriate...)

yurt1 · 03/11/2007 22:16

Thanks all we're safely home. Today has been exhausting so I'm off to bed. Thanks for letting me rant a little

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yurt1 · 04/11/2007 09:38

mb I just saw your stuff about vomiting - was that ds?

The annoying thing iis that ds1 LIKES fireworks.He just CAN'T stand still. At all. Ever. If I could change one thing about him I wouldn't ask for speech, I'd give him the ability to wait and stand still. It's that that prevents us and him accessing almost anything. Even things he would like.

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GunpowderDragonsAndSoup · 04/11/2007 10:06

This is kind of a hijack - I've just helped at our school firework display. What would make it easier for you (and any other SN/disabled parents) attend something like this? It occurs to me that there is no special provision at our display, it's very much a free-for-all.

Obviously changing the behaviour of other parents is somewhat beyond our control though. More's the pity.

Blandmum · 04/11/2007 10:24

neither ds not dh vomited so it was a good night!

This is the first year that the fireworks were enjoyed by ds.

He 'tolerated' them last year, while standing indoors. This year he shone the torch for my mates dh to see to light the fire work (from a stafe distance)! A huge step forward.

One year he got so freaked out he vomited and totaly filled the flooring of my 3m by 3m kitchen area!!! We were both sliding round in the vomit!

So you can imagine I was quite please with this years performance

yurt1 · 04/11/2007 12:54

Dragons to be honest there;s usually nothing that can be done to make things accessible to ds1. The most difficult thing for him is that he can't wait. Really really really can't stand still and wait for anything. It;s why we can't go shopping etc. MB can tell you the interesting experiences we go through if we want to get a cup of tea in a cafe....(especially when I don't bring any money )

He has compulsions as well (yesterday the burger van) where he'll want to repeatedly approach something and touch it, or shut the door, or sniff something he's not allowed to. And because its like extreme OCD preventing him gets very physical and requires 2 people for constraint (which is why people - reasonably- look- just wish they wouldn's stare).

For ds1 any event would be a case of not making him queue. As soon as there;s a queue he can't go, there's no way. Firework displays will be a difficult one, DS1 is quite unusual in liking them sot perhaps some sort of lit area a bit further away, but tbh I think it's a hard one to make accessible.

MB- It sounds like real progress has been made!

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GunpowderDragonsAndSoup · 04/11/2007 13:42

And one of the things about firework displays is that they never start on time....

I guess a "fast track" ticket to bypass the entrance and a separate area (ie not crowded) It's a ms school so the range/severity of disabilities isn't huge. It just occurred to me reading your post that we make no provision at all for disabilities at present when it shouldn't be too difficult to put some things in place.

It only occurred to us this year to have a "quiet room" where scared children could retreat to so siblings didn't have to miss out and it was hugely popular.

supportman · 04/11/2007 22:29

I went to a nice firework display this evening with work and I had to do some meds via mic-key button, people were just amazed by this and couldn't stop staring!

BTW Fio if you see Supportlady before I do then let her know she missed out on a fantastic firework display

mymatemax · 04/11/2007 22:49

we went o friends for fireworks & ds who can't stand the sound of a microwave or fridge LOVED the fireworks.

The only problem was he wanted to lick the sparklers - he didn't have a sparkler (i'm not that brave/foolish). But he was lunging with his mouth open & tongue out at everyone elses we ended up strapping him in his buggy ^ feeding him hot dogs to keep him calm.

We still had a bit of staring from some friends of our friends but ds told her she had fat boobs so kind o got his own back

yurt1 · 05/11/2007 08:39

oh that's funny mymatemax. DS1 hospitalised me over his screaming about a microwave once (I was 39 weeks pregnant, it was xmas day- he literally screamed about the microwave all day, wanting it on, then screaming at the noise). He also went through a tage of freaking out every time a little propellor plane went past. Doesn't mind big jets, or fireworks though.

DS1 likes sparklers as well, but tries to touch them.

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yurt1 · 05/11/2007 08:41

oh realised that sounds weird - I was hospitalised because by 8pm my blood pressure was 240/120 or something ridiculous (top one might be wrong, but it was 200 & Something iirc). They gave me a cup of tea whilst doing the bloods and it slowly returned to normal He's fine with microwaves now.

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FioFio · 05/11/2007 10:16

This reply has been deleted

Message withdrawn

mymatemax · 05/11/2007 17:07

Yurt - Was that the only way you could get a cup of tea & some peace & quiet on XMAS day.

My ds2 loves planes if he can see them if its cloudy forget it he freaks, I think he just needs to understand whats making the noise.

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