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ASD referral sent back due to masking at school

1 reply

Pippapotomus · 11/01/2021 08:00

We've suspected DS is on the spectrum since he was 2, he is now almost 7 and his stimming routine is unchanged for the past 5 years.

He is also a type 1 diabetic, at school he has a part time 1-1 on and off during the day to help him check his blood and take his insulin. (snack and lunch times and PE) As he gets older and more independent it's likely the hours will gradually decrease. By the time he reaches secondary school he needs to be able to pretty much manage on his own.
A diagnosis would mean the funding might be extended.

His GP agreed and sent off a referral, which was then rejected by the paediatric team as school have not noticed anything. What the school don't see is him having to stim for half an hour as soon as he gets in to calm down. (his glucose levels crash regardless of how high/low he starts, how much insulin on board and what time it is ((same crash different time when finishing early at end of term)) as he relaxes.)

At a bit of a loss with what to do next.

OP posts:
secular89 · 11/01/2021 14:25

Apart from stimming, do you recognise any other behaviours which may warrant ASD. Stimming alone would not indicate that your son may be on the spectrum. Instead of your GP referring to the ASD pathway. You can ask him/her to refer your son to see a developmental paediatrician- that way your son can get a full developmental check... genetics, play skills, communication as well as the look out for ASD. If the Developmental paediatrician has any concerns regarding ASD, she will then refer and it may be a bit quicker.

Diagnosis doesn't necessarily mean extended support. It's based on his needs so your DS needs wouldn't decease because he is getting older etc... but I can see your logic.

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