Hi all, if anyone remembers me!! Me and dd now 2 with Noonan Syndrome...
Well we moved house in September lost internet, except for much begged for time on DH's laptop which I finally now have!!
Anyway as far as the Sn bit oes we have all referrals, first SALT next week, genetics counselling and one very self important HV who thinks she knows everything about Noonans after looking it up on google
She tried to measure dd's height with a standing up measure.. dd cannot walk or stand alone, has a right tilting head and has consequently shrunk in the last 6 mths by .5cms AAARGHHH the only centile she was bloody on has now gone!
Anyway dd is marvellous, a joy and I hope to be back in some way shape or form more permanently later in the year when I beg for better net access...
Much love from Lincs
J + the kiddies