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Child disability living allowance higher mobility rate for autism

5 replies

YellowSunflowers2020 · 10/12/2020 14:48

Dear mums,
I am writing for help with completing the mobility part of the form. Anyone completing these forms will know they are far from easy to complete.
Has anyone managed to get the higher rate for a young child aged 5-6 with autism? If so can I please ask you to share what was written. I have read online that meltdowns and refusal to walk can be awarded higher mobility rate for children.
Thank you so very much in advance.

OP posts:
BlankTimes · 10/12/2020 18:10

Has anyone managed to get the higher rate for a young child aged 5-6 with autism? If so can I please ask you to share what was written. I have read online that meltdowns and refusal to walk can be awarded higher mobility rate for children

I really hope you do not mean what that sounds like.

Are you seriously asking people to give you what you hope are the "right" answers that will allow you to receive a higher rate of DLA even though your child may not display those behaviours? Because if you are, that's fraud.

DLA awards are based on a child's NEEDS, not their diagnosis. Not all children with autism are awarded higher rate mobility, some have few mobility issues, some have many. Every child with autism presents differently.

Fill in the forms and TELL THE TRUTH ABOUT YOUR OWN CHILD

Both Cerebra and CAB do a guide to help fill in the forms, by all means use those.

YellowSunflowers2020 · 10/12/2020 20:31

I find your message extremely offensive. My child does but I was asking for help on how to best describe these. If you have a child with special needs you ought to know how difficult it is to get amy form of funding. No need to respond if you are going to be disrespectful again

OP posts:
Ilovellamasandpenguins · 10/12/2020 21:20

I am not sure, but you may need to check this - a child will only qualify for higher rate mobility if they either have a physical disability which directly impacts walking or if they get higher rate care and only then if you can prove mental impairment/they are a danger to themselves.

I have got higher rate mobility for a child with autism (appealed on 3rd award). Meltdowns, refusing to walk, running off , constant supervision can count towards a higher rate mobility award.

Just be brutally honest on the form and lay out EVERYTHING you do, however little, (I always have a little weep after I fill our son’s out).

blanktimes is right when she says all children are different. We have another child with autism and we haven’t even applied for DLA as he wouldn’t get anything (unless they gave an award for ‘being annoying’).

Good luck

Niffler75 · 10/12/2020 21:47

@yellowsunflowers2020 Hi, the Cerebra guidance I have found extremely helpful.
With regards documenting mobility needs, be truthful and direct. Use additional paper to fully describe needs in detail.

I have found it helpful in the past to keep a care diary as I sometimes genuinely forget how much I do to support my son as it's normal for us.

Boulshired · 11/12/2020 11:42

At this age the best evidence is supporting third party evidence for SMI or severe behavioural needs regarding HRM, it is common for reconsideration and appeals (even with supporting evidence). There is always the problem of interpretation from the decision makers no matter how well written.

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