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Have been advised to ask for advise in this section regarding my nieces behaviour.

14 replies

familymatter · 15/10/2007 21:32

here

She has been abseessed with sex from a very young age, around the age of 8 i'd say, but her claims are always sinister, we have lost count of the amount of times she claims to have been followed, attempt to be gragged into cars, perverted remarks made to her by men, and so on, proffesionals have failed to dx her, she also has mild learning difficulties, is incontenent, is immature for her age, is extroadinarily chatty, and very touchy feely, she can be very sweet one moment, then becomes aggressive in the blink of an eye, she screams and shouts at random objects, she also suffers from petit mal episodes, though they are very few and far between now.

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familymatter · 15/10/2007 21:34

She also has unusual hobbies, she is a soap addict, until recently she would sit ready with her pad and pen before the episodes start, then during the programme she would write the names of all characters in each scene. Now she writes scripts of conversations she has had during the day.

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familymatter · 15/10/2007 21:36

Just going to put ds to bed, will be back to read replys, if any

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Nat1H · 15/10/2007 21:55

Have absolutely no adive - sorry, but didn't want you to think that nobody had read this. Sounds awful. Has she ever seen a psychiatrist? Do you think it's linked to her condition? Must be awul to live with - I really feel for you all

Mitchell81 · 15/10/2007 22:03

No advice, But sure someone might come along with some advice.

familymatter · 15/10/2007 22:06

Thanks Nat, She has seen countless proffesionals, but not sure if she has seen a psychiatrist, will mention it to my sister. Unfortunately sister has never mentioned the sex issue to the proffesionals, so nothing is in writing, its a shame as it would have made dealing with the ss alot easier.

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LIZS · 15/10/2007 22:08

Don't know but suggest her parents need to go back to the professionals. The scribing sounds like some sort of coping mechanism for whatever she is experiencing, real or imagined.

familymatter · 15/10/2007 22:13

Hmmm, yes, I often wonder if she is confusing reality with her thoughts.

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eclipse · 16/10/2007 21:06

familymatter, your final comment may be more accurate than you think. There does appear to be a group of children who do think their thoughts are reality although there is, as yet, little hard evidence as to how/why things are going wrong for them. If she is to go for more assessment, you should suggest her parents make sure the team involved has worked with cases such as hers because many professionals will not have. Your description of her in your original post suggests she is very complex and would probably need to be seen by a specialist multi-disciplinary team at a tertiary level, rather than local services. Regardless of the case at hand, she sounds like she has not yet been properly diagnosed.

magic5 · 16/10/2007 21:19

Hi, why dont you ask your gp to have refered to great ormond street childrens hospital asd unit.They can pinpoint what her condition is and any others she may be suffering from.ie. adhd,ocd,tourettes the list goes on.They meet every friday about which referals to accept.It either rule out any conditions that may be a thought off or rule in any you havent thought off.They are very good and compare each child with thousands around the world with similar traits.
Proffesser skuse is the leading chap there.They also have a a website for you to look at.

familymatter · 17/10/2007 10:00

Thankyou magic and eclipse, bth very helpful, she has been assessed for ASD, but this was ruled out, though I beg to differ as my ds is ASD, and I can see many similarities between them, my sister is planning on getting her reassessed, but she wants to leave it a short while until the current issue is over, as she does'nt want to appear to be glossing over it, and sweeping it under the carpet, also because she is keeping an open mind, and god forbid there has been something untoward happening, she does'nt want her dd to accuse her of trying to cover it up with a disorder.

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familymatter · 17/10/2007 16:48

magic5, could you link me to that website, I cant seem to find it, my sister is very interested.

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eclipse · 17/10/2007 18:36

familymatter, I can understand your sister wanting to try to keep the diagnosis and the current situation separate but it is likely that they are not. If your niece is prone to catastrophic thinking or confusion between thought and reality, these can be evaluated as part of that assessment, provided it is done by a team with expertise in this area. To try to sort out the abuse/assault claims without full assessment seems almost impossible. Naturally it is possible that her claims are true but this process would not detract from that, if that is the case. Hope that makes sense...

magic5 · 17/10/2007 19:59

Hi,its
www.ich.ucl.ac.uk/gosh/clinicalservices/DCAMH/Homepage. Hope that link works,if not copy and paste into the browser.
You want the Neurodevelopmental Service at GOSH.
You will need a referal from your GP or peaditrition to get see at GOSH. It doesnt matter that you dont live in London as they will still see you.
They are very good up there.
They dx my ds2 with ASD/ADHD and moniter his progress with diffrent tests such as ADOS and IQ and medication etc and have close contact with his school and help with staementing etc.
They also say what the child will need throughout their life.
Good luck.

familymatter · 18/10/2007 10:12

Thanks
Things seem to be getting rapidly worse, it was a week ago she opologised to her step dad, said she had made a mistake, she then spent the next days hugging him, and refused to talk about what she said, she seemed disgusted with herself. Social services met her and spoke to her at school, then ss visited my sister, and niece claimed she does'nt feel safe at home, ss said they will speak to thier head office about what to do next, but they dont seem overly concerned, they suggested she be reassessed, so sister has made an appointment.

Niece now claims again she does'nt want to live at home, whether her stepdad is there or not, she also claims ss said they would see her next week, at the same time, and they will try to find evidence to arrest him???, this is clearly not accurate, nothing was said to my sister, and besides, if its true what she has said about her stepdad, all her sis was go into her room when she was in her underwear, and walked straight back out, thats not illegal surely, in any case her step dad has said this did happen, he thought she was out, and went in without knocking to fix her dvd player, however he says she was fully dressed.

Niece is also saying she is scared but has no idea why, I find this disturbing, I am no doctor, but with everything put together, mental illness is screaming out at me she does'nt appear to be scared, she does'nt hide in her room, and mostly the atmosphere is as it has always been.

She is generally acting fairly strange altogether, my sister asked her if she would like to spend the night at mine, and she said 'no, not with her bloody kids, urghhh' yet up until last week she idolised my kids.

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