What would you love to be able to do as a family...........

[anniebear]

For me, I would love to just be able to sit on a Sunday afternoon all on the setee and watch a movie like Mary Poppins, Wizard of Of etc

I know its just a simple thing, but I would love for all 4 of us to do it

Obviously I could, as most could on here , list many things

Just often think about this one on a sunday as we are in a lot of the day

to go out and not be stared at.

Yes I would love that too AB.

Funny you should start this. I took dd to drama yesterday and she was playing up.They also do ballet and there were all these sweet little 3 year olds in their leotards all sitting beautiful and I actually got really choked. Feel like we really missed out in some ways

I choked yesterday in debenahms resturant looking at the other kids drawing at the little table....SO wanted my lo to just toddle over and join in....still, I didnt dwell on it like I usually would. I must be getting better

gosh, go out without dd screaming if we dare to stop pushing her wheelchair. Or have an evening where she wasn't up till midnight so me and the boys could watch a film.
Or as twoshoes says, not be stared at. We were on the bus friday and I could see everyone trying not to look. dd sat in her wheelchair drooling like a champ and doing that open mouth CP thing (think Stevie Wonder) and making CP sounds. She is blissfully unaware (being 3 and blindish) that this is odd.

To be able to go to the park and let my 2 sons play on their own - together! Then I could sit down and chat to the other mums, instead of constantly helping DS2 to access equipment!!

we live on the coast & although we use the beach in the summer, its all a bit of an effort.
I'd love it if we could all just go for a walk
on the beach

To be able to relax in the garden or the park, watching while my two sons played together kicking a ball or going on the play equipment etc.

I'd love our family to go for a cycle ride, or walk in the countryside, to see hills, running water etc, have a picnic. That's what I used to do with dh before children. I'd love to do it, but ds has cp.

Same as Saker and Nat1H! Though it would be nice to be able to go to the cinema as a family too. Having said that we are thinking of attempting Ratatouille....will report back.

I would love to be able to go to the swing park, or toddler group or soft play centre and do that sitting down with a cup of coffee chatting thing! Wherever we go I am right there next to dd helping her to access all the stuff any 18 month old 'toddler' wants to. Any why doesn't any other mum ever join me? I sit on that play mat at toddler group and all the other mums sit on the chairs.

Nat1H, would also love to be the one who can sit at the park whilst the children play!!

and also,twoisplenty , the bike ride also

Jekyllywoo , I promise that if I came to your toddler group that I would come and sit on the mat with you

Actually on the subject of cinema, for anyone in East Cambs, Bizzykidz (local special needs group) are showing films at Highfield School once a month - here. Children welcome to talk, run around, dance etc .

Have visitors, ds1 tends to get sos tressed out its not worth the aftermatha s a rule

Hard on ds2.

We did have a retry alst week buts aid child visitor got injured. Again. Bugger (only a bruide mind.... we're completely on top of ds1 so anyting otehr than a quick blow is prevented)

I thnk that one is the heardest; the rest of the way ds3 is just like a 2 year old so exist in that mindset really (no small toys, etc) and I am so used to ds1 in supermarkets now that I can pretty much blank it for a certain amount of time.

Actually would benice to still have contact with MIL who buggered off after DS1's dx. She's a cow to me and always has been, but she's family.

jekyllwoo- know that feeling, with ds1 was likely to be a thump because said other child had touched him or something but i gave up on todddlers group in the end- no point!