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Does anyone have experience of MRI scans with a toddler?

12 replies

Jenkeywoo · 30/09/2007 22:59

My dd is 18 months old and has hemiplegia - I know that at some point prior to birth her brain was damaged resulting in the CP. I have been told that an MRI would be able to pinpoint a bit more when the damage occured and also give a better idea of what the future may hold. There were issues with the delivery and I think constantly about what happened and if it could have been prevented. I am seeing the Paediatrician in a few weeks and I am considering asking for an MRI (if they would give one of course). Can anyone give me an idea of what it entails? I don't know how distressing it would be for dd and need to think carefully about what I may be potentially putting her through. Thank you.

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ShinyHappyPeopleHoldingHands · 30/09/2007 23:07

Hi Jenkey

You have to be motionless in an MRI so younger children are either sedated or put out with a small amount of general anaesthetic. DS has had an MRI both ways.. sedated at 18 months (he was out for the count!) and under a GA at five years old. He was alseep longer with sedative actually.. he takes a while to wake up after those but with a GA he's wide awake asking for toast within half an hour!

They won't do an MRI unless they feel there is good reason of course, whatever you say unfortunately as they are expensive

used2bthin · 30/09/2007 23:09

Hello my DD had an mri aged 1 week. The surgeon who wanted it done said it would be under general anaesthetic but the aneasthetist refused and said we would try "cuddle and wrap" which involved feeding her to sleep then swaddling her. It was very very noisy so she didn't sleep but didn't seem to mind or at least didn't try. With a toddler I think a sedative at least would be used as they need to remain very still. I saw toddlers going in and they were given something(possibly a general)then came out and round very soon after. It is a big tunnel thing, I went in the room with DD so was able to see it all and they literally just go into it lying down, you can still see them from the end if you see what I mean? Hope that helps!

used2bthin · 30/09/2007 23:15

I meant didn't cry sorry!

Jenkeywoo · 30/09/2007 23:15

Thank you for your experiences - I will have to talk to the paediatrician in any case. We have quite a few concerns with the diagnosis and treatment at the moment so it will be one of the issues I raise. Better start making a list of everything I want to talk about..

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used2bthin · 30/09/2007 23:22

Good idea to make a list, I do that now before consultants visits to make sure I get as much out of it as possible. Too often I have waited ages then not been able to remember everything I wanted to ask.

mimsum · 01/10/2007 13:54

ds had one when he was 2.5 - he had a general anaesthetic - the worst bit was the drs just held him down and put the mask over his face - I can still hear him calling "mummy, why are they doing this to me?" - the anaesthetist assured us he wouldn't remember, but he did

he had an op when he was 5 and this time the anaesthetist was lovely - gave him a pre-med so by the time the mask was put on he was away with the fairies

both times he was awake v quickly afterwards and v grumpy for an hour or so, but otherwise ok

Blu · 01/10/2007 15:35

DS had an MRI with sedation.
He was given a big dose of a mixture of drugs, (anti-histamine and muscle relaxant, I think) orally, and went woozy and flat-out asleep within about 15 mins.

I can't remember if we had to starve him or not for sedation - if not it's a big advantage over GA. (he has had 4 of those).

They let us go home as soon as he was awake again - but he did fall straight back to sleep when we got home, and slept flat out until the next morning - when he popped up completely back to normal.

needmorecoffee · 01/10/2007 18:18

dd had an MRI last week and was under a GA. To be honest, the damage you see on an MRI will not tell you the prognosis. Massive damage can lead to a normal child and just a few millimetres of damage can cause severe disability.
An MRI would be able to tell you if the damage happenend all at once like in hypoxia or was accumalative like in poor placental function but not exactly when and why.
There's risks with any GA or sedation so you need to ask if its medically necassary rather than just curiosity. DD has severe quadraplegic CP abd was given one at 1 week old to see what was going on but we've never bothered with another. She had one last week because she's been on steroids for seizures and her doc thought she might have developed cerebral venous thrombosis (nearly always fatal). Thank goodness she hadnt and while it was interesting (and distressing) to see her damage (her motor cortex is just gone. Nothing left) I wouldn't have subjected her toa GA usually.
She would have to be starved and might feel very crummy when she comes round afterwards. Something to bear in mind.

beep · 01/10/2007 18:31

We were offered one when dd was about two ( she has cp,spastic diplegia) ti won't be able to tell you tyhe prognosis but from they were able to say it happened about 10 days prior to birth.she was sedated took ages for her to drop off as she vomited after being given sedative then took her ages to wake after but was fine.It took ages to get the results as they sent them to another nhs trust for analysis.

ShinyHappyPeopleHoldingHands · 01/10/2007 18:34

Quite NMC. As I have just said on the other thread, DS's scans show NO damage.. when he is in fact classed as having severe physical and learning difficulties.

Jenkeywoo · 01/10/2007 20:14

Thank you for all your information, I can see that an MRI is not to be taken lightly. There is an interesting article here about CP and MRI's for those that might be interested. www.medscape.com/viewarticle/545528?rss

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Jenkeywoo · 01/10/2007 20:15

Sorry, link not working for some reason. Here is the text:

Children With CP Should Receive MRI Scans

Susan Jeffrey

October 4, 2006 ? A new cohort study suggests MRI scans can help to establish the pathologic basis of cerebral palsy (CP) in individual patients and correlate strongly with clinical findings. The researchers maintain that all children with CP should be scanned to help parents and clinicians in planning for their future.

"I think people in the past have tended to think that it's not much use to do scans; in fact, in North America it's been hard to get scans done on cerebral palsy children, because they say, 'Well, what can you do about it?' " first author Martin Bax, DM, from the department of pediatrics at Imperial College London, United Kingdom, told Medscape.

This study, he feels, shows that MRI images can help doctors to guide families on expected outcomes for their children and help parents to see and better understand the actual damage that has occurred. "It's not new, but the fact that we've done it systematically in a whole clinical population is what's significant about this," Dr. Bax said. "Because of the good clinical correlations, we feel very happy in saying that [scans] should be done."

Their report of results from the European Cerebral Palsy Study appears in the October 4 issue of the Journal of the American Medical Association.

Large Study Population

This cross-sectional population-based study was carried out in 8 centers in Europe in England, Scotland, Ireland, Portugal, Sweden, Germany, and Finland. A total of 585 children with CP born between 1996 and 1999 were identified. Of these, 431 were assessed clinically using a standardized exam. Parents answered a questionnaire, and obstetric, genetic, and metabolic data were taken from medical records. Of the children, 351 had a brain MRI done.

Important findings include a high rate of infections reported by mothers, occurring in 158, or 39.5%, of them, the authors note. More than half of the children, 54%, were born at term, while only 47 children, or 10.9%, were very preterm, born at 28 weeks or less. There was a high rate of twin births in this population, with 51 children, or 12%, known to be from a multiple pregnancy.

Clinically, more than half of the children had hemiplegia or diplegia; less than 20% had quadriplegia, the most severe involvement.

European Cerebral Palsy Study: CP Type

CP Type
% of Cohort

Hemiplegia
26.2

Diplegia
34.4

Quadriplegia
18.6

Dyskinesia
14.4

Ataxia
3.9

Other CP types
2.6

MRI scans showed that white-matter damage of immaturity, including periventricular leukomalacia (PVL), was the most common finding, they note; only 11.7% had normal scans.

European Cerebral Palsy Study: MRI Findings

MRI Findings
% of Cohort

Normal scan
11.7

White-matter damage, including PVL
42.5

Basal ganglia lesions
12.8

Cortical/subcortical lesions
9.4

Malformations
9.1

Focal infarcts
7.4

Miscellaneous lesions
7.1

"Not only do MRI scans help reveal the pathologic basis of the condition, but the findings have a strong correlation with clinical findings," they conclude. "This may be useful in helping parents, clinicians, and others involved in the care of children with CP to understand the nature of the children's condition and to predict their needs in the future. Therefore, all children with CP should have an MRI scan."

The researchers also developed a standardized MRI scoring system for this study that can be used clinically, Dr. Bax said. "It allows you to decide not only the nature of what's going on but also the severity."

Their findings have implications for litigation, where CP outcomes are often alleged to relate to obstetric malpractice, they note. Only 70 children had either cortical/subcortical damage or basal ganglia damage and were born after 34 weeks of gestational age. "Thus, in our study, only 19.9% of a population with CP might be considered on the basis of their MRI scan as having a possibility of some type of obstetric mishap as the cause of their brain damage," Dr. Bax and colleagues write.

Preventive strategies suggested by their findings include the systematic identification and treatment of maternal infections and close monitoring of multiple pregnancies, they note.

Complex Causes

In an editorial accompanying the paper, Michael E. Msall, MD, from the Pritzker School of Medicine, University of Chicago, Illinois, calls the report by Dr. Bax and colleagues "a major advance," with a large population-based sample where subjects underwent both clinical and MRI evaluation.

"Similar to research findings in coronary artery disease and adult stroke, pediatric investigators have recognized that the clustering of multiple risks affects the developmental vulnerability of the brain," Dr. Msall writes. "The current task is to understand the pathways of risk and protection for specific groups of children with CP."

These groups include twins and high-order multiples, children with intrauterine growth restriction or malformations, those undergoing congenital heart surgery, and those with neonatal seizures and encephalopathy, he writes.

"By focusing efforts on white-matter injury in preterm infants and neuroprotection of term infants with the highest risk of encephalopathy, as well as realizing that a substantial number of term and near-term children do not have a simplistic cause for their motor disability, families can be helped and the general public can understand the need for addressing shortcomings in current knowledge," Dr. Msall concludes.

JAMA 2006;296:1602-1608, 1650-1652.

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