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Mild cerebral paresis experiences?

1 reply

Ella2020 · 05/07/2020 10:20

Dear all,

I am new here. First time Mom, my beautiful daughter is almost 5 months old.
I had a very traumatic birth. After about 67 hours of contractions and labour, and with her heart rate dropping at every contraction, I finally gave birth vaginally. She was not breathing, but after sucking her airways, she started screaming, and had a full apgar 10 at 1 minutes. Her blood test was way off though, showing she had been short of oxygen for quite a while. However, as she was clinically fine, she came back to the ward with me.
On the second day, she started having seizures. After countless tests, an MRI showed that she had suffered a stroke on the left side, most likely during the birth. She was put on keppra and is still on it. No seizures after the initial two that evening.
She had no problems feeding.

We have been followed by physiotherapists and a neurologist to evaluate for CP. Two individual physiotherapists have consistently said that she is currently showing no signs. Her tone is completely normal, she's on point with gross and fine motor skills so far. She's almost always on tummy time and is lifting her head well, pivoting and allllmost rolling over. She can roll if put on her side.
The neurologist saw us last month and also said that she is developing normally so far, no signs on CP. Hitting all the milestones so far.

However, the past 3 days I have noticed that her left leg kicks a lot more than the right leg. She does kick and use the right one, but the left one seems to kick a lot more. She bears weight on both legs though, kicks off with both equally as well. Grabs both feet equally. I have not noticed any tone difference in her legs. I am a physician myself, but a heart specialist for adults so not much experience with babies.

If the above "normal" or does anyone recognize it as an early sign?

Thank you so much. So difficult not to worry constantly.

OP posts:
TheBuffster · 16/01/2021 22:33

Hi didn't want to read and run.
We're in the process of cp DX so I don't know how useful my experience will be. Our ds showed a side preference, was late in tummy time and a bit late for sitting. He rolled to one side more. He kicked both legs together and the left leg independently, he has had a real spurt over the last few months and now crawls with both legs, although he steps up always on his left. You can feel the hypertonia in his leg though it isn't always there.

What I would advise is don't let people fob you off with believing baby is fine if your instinct says otherwise. I tried to be reassured for months and the experts were telling me I was nuts right up to the point when it suddenly switched to probable cp.

I really hope your little one is ok and do sympathize because my lo birth was awful for other reasons.

The positive I can give you is my lo is suspected to have very mild cp, your lo sounds like they're doing much better so if there is something hopefully it's mild. Our ot also said babies can have a preference for kicking etc. And still be in the realm of normal. Unlikely for our boy now but maybe not your lo.

I know that doesn't take the sting away from experience.

Hope it turns out ok for you. X

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