Strange symtoms.................

[deeeja]

My ds, who has recently dxed with gdd + autistic traits, has days when he can't walk.
during these days he sometimes crawls on all fours, and other times he bottom-shuffles.
He gets very distressed when this happens and I generally pick him up so he doesn't have to attempt crawling. I know he wans to walk, because he always attempts to and is forced to crawl, as if his legsg don't work, or he can't make them work. I sometimes wonder if he can't send the signal from his brain to the appropriate muscles.(sorry if that sounds like primary level science)He also sometimes can't talk either and makes 'ooooo' and 'eeee' sounds. He knows the words for biscuit or drink, for example, but on these days he can't seem to say them.
I don't understand what is happening to him, I wish I did so I can help him more. He gets very upset.
I breaks my heart to see him like this.
I have asked at the cdc, and they have said they will look into som occupational therapy, but I am worried that it could be a problem. Shall I make another appointment with the developmental paediatrician?
Is this another symptom of asd, or something else?
I would be really grateful for any kind of answer or advice, please!
Thanks in advance.

Sorry lots of errors, am v. tired. Bunged up with heavy cold!

I would probably ask. What came to mind my was maybe epilepsy or s short circuit. When dd gets runs of slow waves in her brain she gets upset or confused. We don't see actual seizures anymore but the EEG showed this slow wave activity and you can see the difference in her cognition.
Just a thought and probably wrong.

We have something a little similar to this but not as severe. Some days DS can do things and other days you can see by the way he is looking at things that they mean little to him and he hasn't a clue how to respondor what is exected of him. When I spoke to the pead when we first met her it was as though I must be imagining the days when he could do things. I used to get frustrated but then learnt to see how frustrating it must be for him. I didn't push it with the pead because I couldn't see it being further investigated. But it sounds as though with things as obvious as walking/not walking, marked speach changes it would e easy for you to give clear examples, so think if I were you I'd be tempted to speak again with the paed. With transient changes as marked as you describe I hope they'd look into it rather than expect you just to accept it and put up with the distress.
hope your cold clears soon.

Thanks for the answers.
I think I will ask today at the cdc, and insist on an appointment with dev paed.Although, I think they want to stick to their procedure, and will prob make me wait 4 months, but i will def. push for it.
I am gettting tired of the health visitor who still says things to me like 'when he catches up', fgs, and how we can 'show' him how to communicate, and how he will get used to the noise levels! It tries my patience going to that place, but is the only place locally to provide any kind of services. My ds loves all the sparkly toys, but doesn't like any of the adults there, except for one speech therapist, who seems to know when to leave him alone, and doesn't try to 'push' him. They don't seem to understand how to 'be' around him, they just try to treat him like a child without autism, which sends him crazy, yesterday he spent much of the day running away from people and looking for quiet corners so he could line things up, look at leaves and categorise everything by colour.
I see subtle things aswell, it is just when he has these obvious regressions, that I worry most. He really struggles after that, and walks funny, or spends a few days forgetting more words. It seems as though he learns a word, and then forgets ten. It is really hard to stay hopeful.
I have to though, or else I will drive myself crazy.
Thanks so much for yor replies!

at telling joggeroo she must have been imagining the good days.

I would push for an EEG. DS1 (severely autistic) has days when he can't do stuff, it's like he can't bring everything together and get it all to work in synch so he's all over the place and he can't process instructions etc- like joggeroo I doubt that would ever be taken seriously but they should take things like not being able to walk seriously! OT will take ages to get in place- do push other avenues whilst that;s being sorted.

I agree with the others I would push for an EEG & MRI.
A friends ds has GDD & seeing regression & days with variable ability he had an abnormal EEG so went on to have an MRI & it has shown narrowing of the arteries causing epilepsy & many of his symptoms.
But the Up side is although it is all part of a more complex syndrome they can treat it & they have been told they should see improvements.

I'm not suggesting that your ds has the same condition just trying to say that sometimes the paeds need a shove to look beyond the obvious.

Ok, an update.
I went to the cdc. The first person I spoke to was the speech therapist about my ds's speech. Straight away, outof the buggy, my ds decides that crawling is the preferred method of movement today, of he went to the vibrating bubble pole, his favourite thing there. ( I can't blame him it is very cool!)
We talked about his copying speech. I told her also that he keeps on crawling, and has days where he can't talk and doesn't walk properly and he has become worse this week. Then the health visitor arrives, and goes to look in his notes. She then comes back and says that the dr performed a neurological test, and my ds is fine.
Now, I am confused, what does a neurological test look like? Because I certainly don't remember one, neither does my dh. I hate to accuse, but I think she was (stage whisper) LYING!
Also, she said that they think he is talking well and so doesn't need speech therapy. She also said that he doesn't need any help at all. FGS!
AAAAAAAAAAAAAAARGH! What is the point of going there!!!
I told her that he doesn't understand speech, and he is not actually communicating, he is just copying. When he really wants something, he comoes up to me and says 'ooooooo eeeeee' If I ask him 'what do you want', he says 'wha you wan', in an attempt to copy me. He needs help to get from echolalia to speech. I may have to get private therapy, which we just can't afford!
Oh, and to get back to the topic. She said that he doesn't need to have and EEG, and I can't have another appointment with the paediatrician, because he has already been assessed, and he isn't any different from the last time he was seen. It is just so difficult! I may have to get some money together to get a private assessment. First I have to find another paediattrician and get my gp to refer me again.
I am so fed up of going to that place, I don't know if I want to go again.
My poor baby boy

deeeja - was it the HV saying these things to you? or the SALT? In either case it sounds wrong but if it was the HV I certainly would NOT respect it.

As soon as I read your OP the same thought went through my mind as Needsmorecoffee - possibly some kind of epilepsy (coudl be very subtle so you might not notice it) or abnormal brain activity.

but I am absolutely no expert and I really think this is something an expert should look at. Can you ask your GP to refer you again? Or did the Paed not give you a follow-up appointment in any case? Seems odd that with your ds dx that he wouldn't have follow up from a paed.

Really hope you get somewhere with this.

This might be a time for 'making things up'. Wouldn't normally recommend it but if you want an EEG say you saw 'funny movements' then he was dopey afterwards.
They are so useless sometimes.
My dd is 3 with severe CP and some days they still look at me as if I'm lying about how severe it is. And we hardly get any services. Physio once every 3 weeks despite severe contractures, SALT never and OT once in a blue moon.
sigh.

A neurologist once told me there was nothing wrong with my son that wouldn't be cured by taking him to toddler group more often after some 'neurological tests' (he actually has a neurological and conective tissue disorder)

These involved asking him to play with a car on his report he stated 'X made the appropriate car noise' actually X constantly blows raspberries car or no car, can you not tell from the open sores on his chin from constant wetness?

I think NMC could be right, I think a little exaggeration could get you a long way here.

deeja a neuro assessment can be as simple as testing the reflexes at the knees & tickling the soles of the feet.
These helped dx ds2's CP but are in NO WAY enough to discount problems.
Go back to the GP & become a nuisance, i'm sure he'll refer you if you nag enough