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Anyone managed to get meds urgently (UK)

3 replies

Blossom4538 · 27/05/2020 19:55

It is our last resort, we never wanted meds.
Dd has ASD and has huge, aggressive meltdowns, which are debilitating and dominating life. She’s so frustrated with it. We have tried to help so much over the years. I just feel it’s going to be a while before she gets meds (CAMHS). She needs to try them as soon as possible. Is there any way to get them urgently?
CAMHS mentioned assessments appointment and sensory assessments first, after we’ve been re-referees back into their system. GP agreed meds may be the way to go now x

OP posts:
OneInEight · 28/05/2020 08:41

I realise you are desperate (we were too at one time) but I would strongly advise you to wait for professional advice before giving medication to such a young child.

There is no medication that will specifically stop meltdowns. I wish there was. What you are thinking of I guess is medication that may reduce anxiety. The problem is that that most of these can cause side effects in children (some of which are worse than the meltdowns) and, therefore, need careful monitoring. The effects may also be different in children to adults so it is definetely NOT advisable to give a medication for an adult to a child.

I don't know where you are in terms of getting support for your dd via the school system. For ds1 getting the right support here (he went to a special school) made an enormous difference to his behaviour at home (meltdowns virtually stopped overnight). For ds2 medication for anxiety sent him psychotic & even now (several years later) he is doing less well than ds1.

Some children do respond well to medication but just in case you have a child who responds like ds2 you really do have to do this only under professional monitoring and guidance.

Blossom4538 · 29/05/2020 10:38

It’s something we will have to think carefully about. Her anxiety and sensory issues are severe, even now in her own house, if she hears a noise outside, in the distance, she will have a meltdown, trash the house, become violent, try and leave the house, screams outside. She can it tolerate the smells out and about and even her own home. I worry for her. My H as a key worker may have to now take unpaid leave, as he can’t work properly and it needs two of us to look after her.

OP posts:
PaolaNeri · 29/05/2020 21:10

Hi Blossom

Have you called CAHMS and told them you are at crisis point with her? You need to call them and tell them you cannot cope any further and what are they going to do to support you. Do you have any other health professionals supporting your dd?

I know how hard it is getting any help, and I know you are probably worn down and exhausted but you have to make a bloody nuisance of yourself and keep ringing them. Advice given to someone I support, is to call the Police if they become violent towards you or your property, get it logged, the same if she runs off. This may sound extreme, but it was the only way my friend got any help for her dd and she was suicidal at 11 years old.

If you ring out of hours, there will be an emergency number, please call it.

Take care Flowers

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