Anyone's LO diagnosed with PDA?

[Benzer01]

On reading a little about this I am 100% convinced that this is exactly what my son has. I'm really concerned...anyone have any experience they wouldn't mind sharing?

And also, how did you go about getting a diagnosis?

@Benzer01 Hi, I have a son who is highly anxious with demand avoidant and autistic traits that may or may not be PDA. Still trying to untangle issues so will advise as best I can. 😁
From what I understand it can be a minefield when it comes to PDA, a real postcode lottery. Some LA recognise PDA, some don't, some will only give a diagnosis of ASD with a 'demand avoidant profile'.
I have found the absolute best resource is the PDA Society. The website is chock full of useful info and I think there is a helpline. They may be able to indicate what the status quo is in your area with regards diagnosis.
Take a look at their helpful guides for strategies to use at home. They have been a godsend for us! How is school going? Things can be extremely challenging for demand avoidant kids.
Hopefully others will chime in!

Thx Niffler...no idea what our area will be like. His teacher has no issues, but under the surface has made a few sideways comments about him knowing how to get what he wants/me having a hard time persuading him to do something he doesn't want to. She is reknowned for not wanting to 'get into' assessments. Can't be bothered with the paperwork, so I guess it's easier to not 'notice' issues unless they're unavoidable. Or maybe he is fine, but has behavioural issues at home/plays up with me!!!

First step would be to have a chat with your GP and see whether the pathway in your area is to first be reviewed by a Paediatrician or whether it's a referral straight to autism pathway. Honestly give PDA society a call. They are v helpful! ☺