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SN children

Here are some suggested organisations that offer expert advice on special needs.

Hi new here hoping for support which I haven’t received anywhere else.

4 replies

Theodoreb · 02/01/2020 16:55

He I have 3 children one is DS aged 13 who has Severe ADHD I have a DD1 aged 10 with ASD and a DD2 aged 8 who is being investigated for epilepsy but is showing mood disturbances which maybe a part of epilepsy I’m told.

The problem I’ve been looking for support with is DS he was only recently diagnosed after a long time of Ed psych Cahms and other agencies but the past year his symptoms have worsened. Well in the morning before he takes his meds he is easily agitated and irritable and loses his temper easily. This morning DS took DD2 iPad to wind her up well DD2 hit him lightly not enough to hurt him I corrected DD2 and told her it was wrong to hit people even if they do something we don’t like and gave her time out but DS who had only just taken his meds lost his temper and started calling me names and swearing at me which I’m not going to lie was quite nasty.

Now I sent him to his room which he did and I told him to come down when he was feeling calmer. So after about a hour DS came downstairs and said sorry now his meds are working he’s been fine all day lovely pleasant and we have had no other troubles or arguments today.

Well I posted earlier on a bipolar support group and was told my son is a spoilt brat and that I need to hit him and loads of people started agreeing that I should hit him and when I said that I don’t feel violence towards a special needs or any child is acceptable and that he only loses his temper like that before his meds start working or under extreme circumstances I was told I was trotting out the old “mummy’s special boy hasn’t had his meds” and that I was using his illness to justify bad behavior and bad parenting.

But if it’s not his illness why is it that when he has taken his meds he doesn’t lose his temper easily or lash out unless under extreme circumstances.

I just hope I guess that I will actually get support here from mums who maybe understand how difficult it can be having DC with SN and how they can misbehave as a result of their illness and that’s why I have routines and things in place to cope with meltdowns like DD2 going in time out and DS having to go to his room until he calmed down just feel so alone I don’t have many friends over as worry I’ll get judged as we have a very difficult house hold I have bipolar 1 so it’s all about managing each person individual needs while making sure no ones needs are ignored. And that sometimes meltdowns happen doesn’t mean the child is spoilt my children have SN and they really are good caring loving children it’s just that each child has some extra care and understanding required, not assaulting a SN child plus how is that supposed to make him control his temper if I lose mine and strike him.

I deleted the thread as right now my foot is broken I have been walking on it 3 weeks as first doctor made a mistake have fracture clinic Monday to see what needs to be done. I’m trying to change preferred comprehensive schools for DD1 and DD2 because of how badly the school have left my DS down by refusing to acknowledge SN or allow him access to Ed psych and then when things eventually ended badly he got expelled in year 9 with his grades barely anything above what they were leaving primary school.

I’m trying hard to get DS in a new school as would prefer to avoid PRU for now. Sorry rambling but basically have too much going on right now to have people being negative and having a right go at me blaiming my parenting and calling my son entitled spoilt in need of a firm smack to his rear I couldn’t argue need my energy so just deleted the thread.

So here I am and really hoping I get support here as this the last time I’m going to try reaching out of the isolated world I live in for help and support so here I go I don’t mind suggestions or constructive criticism but please don’t tell me my DS is anything horrid or needs to be dealt with violently as that’s not a option just hoping there are people who understand where I’m coming from TIA a for taking time to read sorry if it’s confusing just trying to jog everything down.

OP posts:
Ellie56 · 02/01/2020 17:40

Well first off you don't need that judgemental bunch of twats so good on you for deleting the thread.

Yes it is hard work parenting one SEN child, never mind three! and if you are a single parent (you don't mention a partner) it must be even harder.

You say you're trying to get your son into a different school as he was expelled from his previous one. Is he out of education at the moment then? And if so what is the LA doing about it? Have you considered applying for an EHC Needs assessment? Info here:

www.ipsea.org.uk/ehc-needs-assessments

IPSEA also have an advice line. The advisors book their own appointments so they are put on randomly at any time.If there are no slots available the first time you try to book, keep looking, as appointments get booked up very quickly.

Theodoreb · 02/01/2020 19:45

No I don’t have a DP and exDH has spent one night with my kids in the last 3 months, so don’t get much support. Not going to have a DP anytime soon as I only get to go out once a week and I kinda like spending that with my friends so no time lol.

The education board have not contacted me or done anything to help me get my DS a new school place I have had to ring round and chase up procedure myself. I have a form but the education officer said I’ll have a hard time getting a school to accept DS given what he did. And DS previous school lost the letter DS Cahms sent to them explaining the addition of medication and the steps we had taken to ensure there were no repeat incidences which the school lost the day before DS hearing before governors. I asked could I fax it and they said the fax was broke I asked them to delay the meeting until DS Cahms doctor could re send a letter and they refused in fact his head teacher point blank refuses to speak to me.

What DS did was a teacher had been giving DS loads of detentions for minor things like forgetting a pencil for example. Well DS lost his temper so teacher gave him a after school detention DS was very angry and at home that night whilst talking to friends he thought it would be funny to make a page saying his teacher was a peadophile and he sent it to two friends. Well they sent it to everyone and it went viral and DS a was expelled. police officer interviewed DS without me present and school kept telling me police were going to press charges but after a week I phoned police and police officer dealing said no they never intended on pressing charges and made that clear to school.

I’ll have a look at that link you sent thank you very much any help with school matter much appreciated.

OP posts:
Ellie56 · 02/01/2020 21:28

Doesn't sound like either the school, the police or the LA have covered themselves in glory. Detention for forgetting a pencil? Interviewing a minor without a parent or SW present? Hmm

And as your child is of statutory school age and has been permanently excluded, the LA has a duty to provide alternative education. Sorry you and your boy are having such a shit time.

More advice here:

www.ipsea.org.uk/what-should-i-do-if-my-child-is-excluded

Theodoreb · 02/01/2020 22:18

I protested that my DS was interviewed without me there but school told me it was legal as they had the school counselor sit in on the interview as a appropriate adult.

I wasn’t informed until 2hours later by which time my son had been interviewed and had a expulsion of 10 days. Then they pushed for permanent exclusion and it was granted then it went before the governors and all my evidence was lost.

I was thinking about involving snap cymru and will definitely ask for a assessment of the company in the link you provided.

I am not happy at all, school have also held a second assembly naming and shaming my son and telling the children that he was successfully excluded for lying and setting up a libelous false account against a teacher. since which my son has been hounded by bullying phone calls. I try arguing my sons case but I get told I’m excusing what he did and that there are plenty of children with ADHD and they do not do this.

I am not he had all electronics removed from him for two weeks which as my son doesn’t go out was a big punishment for him.

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