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Here are some suggested organisations that offer expert advice on special needs.

Original poster

Resources for Adults with Aspergers?

28 replies

MTS · 27/09/2004 20:50

Hi I just wondered if anyone had any suggestions for resources - maybe behavioural ideas/high level versions of Social Stories? for adults with mild aspergers?

At a session with a psychologist today it was suggested as a strong possiblity that I have mild Aspergers (gulp). I am (probably obviously) not interested in pursuing any formal sort of diagnosis.

TIA

OP posts:
Original poster
MTS · 27/09/2004 21:38

bump

OP posts:
onlyjoking9329 · 27/09/2004 21:44

sorry cannot help you with this, i have kids with autism but not aspergers, i am sure someone will be able to help

Original poster
MTS · 27/09/2004 21:45

thanks for the reply onlyjoking - was getting to be a lonely thread!

OP posts:
blossomhill · 27/09/2004 21:45

MTS - sorry no advice. Just wanted to ask if you are okay? Do you have people you can talk to?

Original poster
MTS · 27/09/2004 21:48

a bit wobbly, BlossomHill, thanks for asking. On one level, I am me, so it doesn't really make any difference; but in another way it does sort of touch me on a fundamental level really - odd really! I've spoken to DH about it (who has a cold and thinks that is a lot more important). I have sort of suspected something for a few months, and have discussed it with him so he is distinctly underwhelmed. Men, sigh! I don't really have anyone else in RL I would want to talk to about it really; I just don't think that they would understand, or my mum, who would understand would worry.

OP posts:
ScummyMummy · 27/09/2004 21:51

Have you seen this site , MTS? Maybe there will be some ideas for resources on there. It's by and for people with Aspergers.

How are you feeling? Did this come as a bit of a shock or had you suspected it? I imagine it came up in the context of one of your kids being diagnosed, did it?

Original poster
MTS · 27/09/2004 21:53

Hi ScummyMummy - will look at that site thanks. I vaguely suspected, but still.... no kids diagnosed - just me.

OP posts:
ScummyMummy · 27/09/2004 21:54

You've answered my questions as I posted them. Take care- you're absolutely right that you're still you, though I can imagine it feels very strange to have your suspicions confirmed.

blossomhill · 27/09/2004 21:55

I have a daughter with a language disorder so do know bits about special needs and communciation problems. If you don't mind me asking how old are you MTS?

Miaou · 27/09/2004 21:55

Just don't run away with the idea that if you have aspergers (emphasise, IF), you are not a normal, functioning human being who has just as much to give (to MN and in RL) as you had before!

coppertop · 27/09/2004 21:56

Hi MTS. My dh has also been told that he has AS. He found out when we were trying to get a diagnosis for ds1. Once the initial shock had worn off he felt that it explained quite a lot of things for him.

A good site for resources and also chat is:

www.krism.org.uk

Many of the posters are parents of children with AS/ASD but there are also some adults with AS/ASD too. The resources section has a section on sites designed for adults with AS as well as books etc.

blossomhill · 27/09/2004 22:02

MTS - This looks quite interesting -

here

Original poster
MTS · 27/09/2004 22:04

27 Blossomhill!

OP posts:
coppertop · 27/09/2004 22:11

The NAS website also has a list of sites that may be helpful - as well as the more general NAS stuff:

www.nas.org.uk

Davros · 27/09/2004 22:32

MTS, I have a sister with AS, you're much better off trying to deal with it rather than ignore it like she does! Where is MrsF? We need her again! I don't know where you live, but the NAS has a branch that is for adults with AS and Autism London also has an AS socialising/self-help group.

Original poster
MTS · 27/09/2004 22:33

thanks for all the speedy replies! other thing I was wondering; DS, 6 months has had the DTP - should i look at getting single jabs for him, rather than MMR?

OP posts:
blossomhill · 27/09/2004 22:34

I am 29 MTS so we are nearly the same age!

Original poster
MTS · 28/09/2004 09:08

Bumping - have started looking at some of the sites you have recommended; very informative. Coppertop I am curious as to whether your dh took any particular action consequent on his diagnosis as in looking at any particular therapies, or whether he just left it.

Also i would particular welcome your views as to advisability of DS having the MMR.

TIA

OP posts:
coppertop · 28/09/2004 09:24

Dh didn't bother with actual therapies. He did a lot of reading about AS and found lots of little things that sounded very familiar to him and explained (to a certain extent) why he'd been having difficulties. Dh in particular suffers from hypersensitive hearing. He works in an open plan office and had been having a hard time trying to block out everyone else's conversations. He showed the sensory information to his boss and from then on he was allowed to have a personal stereo at work so that he could concentrate. The company where he works also has a policy of making everyone switch desks every so often as some kind of team-building exercise. When dh gave his boss the AS information about hating change dh was exempted from the policy.

Dh's approach has generally been one of finding out all he could about AS. I think he felt relieved to find out exactly why he'd always felt so different to everyone else.

I don't honestly know what advice to give about the MMR. Ds1 had the MMR and this was unconnected to his autism. We also allowed him to have the pre-school MMR booster. Ds2 has also had the MMR. If we'd had the resources to get the single jabs I think we might have considered doing that instead. I'm really not sure.

Original poster
MTS · 28/09/2004 09:27

Thanks CT, that is very interesting. I definitely ID with the difficulty shutting off conversations in an open plan. With one girl I found it very awkward as I could never remember which info she had told me and which I had overheard on the phone to her mum!!!

Single jabs is tbh an expense i could do without. but I think I am literally next door to Direct Health 2000 in Liverpool!

OP posts:
Original poster
MTS · 28/09/2004 10:41

bump

OP posts:
coppertop · 28/09/2004 10:45

MTS - You might have a bit more luck if you start a new thread asking about the MMR. The other posters who have made their decision about the MMR might not necessarily know any adults with AS and so might not look at this thread.

Original poster
MTS · 28/09/2004 10:46

Okey doke, will do CT!

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blossomhill · 01/10/2004 11:24

MTS - just wanted to say I didn;t realise you was mummytosteven! I thought you was a farely new poster - sorry!!!!!

happyspider · 01/10/2004 23:35

MTS - I find this thread quite strange, as you don't seem somebody with a problem with communication: what are the sympotms that make you r psycologist think you have mild Aspergers?