Help I feel really isolated

[Jods]

I have 2 kids my eldest is 2 and the baby is 11 months . Myeldest has loose joints so has been delayed only just started walking. we see physio, ot and just referred for speech and lang. I have just got my daughter referred cos she is delayed as well. My problem is I have friends antenatal people I met but no one really understands I think they probrably think thank god its not me.

Sorry to hear your feeling isolated. Have you asked your HV if there are any support groups locally specifically for parents with special needs children?

Maybe your antenatal friends don't won't to upset you by talking about it in case they come across as patronising. Do you volunteer a conversation about how hard you are finding it?

just got in touch there going to come and see me.
my friends I do chat to them but they always turn it back to what their kids are doing!

That's not unsual, some people just love talking about themselves!!

hopefully your HV will have some good contacts.

Our local authority run a sn mother and toddler group for under 5s, its a great place to meet other people in a similar position. Its open to anyone with a sn child however severe or mild or whatever the sn is. Its worth finding out if your area run anything similar.

Thanx guys! i feel abit better already!

Hi Jods, so sorry to hear your feeling like this. If you ever need someone to talk to please feel free to email me on [email protected] I felt like this myself before, as id moved to a new area and didnt know anyone. Felt really hard going to playgroups and stuff, as felt no-one really understood about my sn little boy.

Thanx mel!
same goes to you too! My email is [email protected]
I think its just hit home that its probrably genetic and we could have serious problems later on.

Oh yes see if you can find a SN specific group; antenatal grous full of typically developing children a place worse than hell when your children have problems.

I was thinking of setting up SN coffee mornings here via the NCT but got overwhelmed with stuff. If you're near me would be happy to try and set something up together.

Hi Gess!
I'm cambridge area where are you?

HI Jods
I agree with the others, our sn group has been fantastic. I hope you HV can give you some support.
I'm in Suffolk, so not that far, if you are out this way give me a shout.

hiya jods, i dont suppose you are in a surestart area are you, our surestart have a sn group aswell, i moved here knowing no-one really, purely for the likes of surestart as i was rural and very isolated with 2 sn pre-schoolers, surestart have been an absolute godsend for me, ask your hv as you may still be able to get help even if you are slightly out of the area with an sn child, your hv can prob refer you, there are many more peeps out there in similar situation than you know hun, its just finding them, good luck x

sorry jods nowhere near me. I did run a big coffee morning a few times, I just rang the local paper and was inundated- you could start something up yourself at home. Run one, then ask someone else to host the next one (perhaps plan it before everyone goes) etc. There will be others out there, it's just finding them......

Hi mymatemax,foxymagoo,gess,
managed to find a special needs playgroup in my area.