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Think my toddler could be autistic

5 replies

Jud19 · 24/09/2019 14:12

Hey I’m Looking for some advice..
Apologies for the long post.

My oldest boy who is 2 has just started nursery about 3 weeks ago the first day he was there it didn’t go well.
The nursery had to told me about his behaviour when I went to collect him these were things that he’s been doing for a while and that I already brought it up to my hv but it was dismissed as normal toddler behaviour he’s getting a bit better now when dropping him off but only aloud in for 1hour.

The nursery asked my permission to phone my hv to speak to her. The next day I got a phone call before taking my son to nursery from my hv that the nursery have brought up some concerns about my sons behaviour this was only three days of him being there they noticed he was hand flapping, rocking back and forth and other things.

I’ve always had my worries and always brought them up to my hv when she came to visit but she would say it was all normal and that he was meeting all his mile stones so I doubted myself but he still wasn’t talking i've been told they want to get him to be referred to a paediatrician to be tested and to go to speech therapy which I already asked for well before him he stared nursery I took him to the doctors they only sent him to get his hearing tested and that was that nothing ever came of it.

These are things I’ve noticed since he’s been a baby..

He doesn’t talk but can count up to five he did manage to count to ten before, knows some animal noises that he can do as in ‘woof woof’ and ‘quack quack’ and knows some songs which I find so bizarre.
He used to say mama but I haven’t really heard him say it for a while..

He put his hands in his ears sometimes it could be when the washing machine is on, the tv, very sensitive to his baby brother screams he gets very upset with this he will start screaming and crying then go bang his head I don’t know if this is a sensory issue.

He stands and walks on his tip toes has been doing this since he’s started walking when he was 15/16 months.
He started crawling at 10 months I don’t know if this was late or not..

He likes to spin around a lot or when I’m holding him I do it he loves it and will roll his eyes to the side when I do this. Sometimes he’ll make unusual facial expression I feel like I observing everything he does now since being told this.

He hates his hair getting cut he has a total melt down I actually cried when I took him as it was so bad it was like he was so scared it took about four of us to hold him and the hair dresser to cut his hair now I won’t take him and just doing it at home as I felt heartbroken seeing him like that.

Since a baby he’s always been fascinated with wheels on anything and would flip the toys around to spin them this is when I first started worrying as I knew this was a sign but I also knew this could just be the way he like to play.

He has really bad tantrums he will throw himself, head butt walls or anything in sight to hurt himself and really bad screaming I always get scared incase my neighbours hear him.

He doesn’t use gestures or point to things he wants, doesn’t ask for anything and he doesn’t understand a lot of what I’m saying for example he loves to go out but when I’m getting him ready to go out he gets agitated I try telling him we’re getting ready to go to the park but he doesn’t realise it until I open the front door then he will run out and laugh.

Head banging, this is something he does all the time very hard on windows, floors, walls and cupboards.

I took him on the bus and when people where crowding around us waiting he started getting really upset and unsure so I had to walk away with him until the bus arrived once he was one and looking out the window he was fine. He’s really unsure of people he doesn’t know when he was a baby he would cry hysterically the whole time when family member he didn’t see a lot would come to visit.

He high pitch screams almost every minute of everyday it could be about anything, the nursery said this is maybe out of frustration as he can’t communicate it gets very tiring when he does this.

He has good eye contact.

He has no issues with food just normal almost likes everything.

He doesn’t always sleep during the night he will wake up screaming and crying which is scary sometimes I’ve just put it down to nightmares.

He loves to push buttons all the time and will sit there for ages doing this if I tell him no it’s like his little hand is twitching needing to push it.

He’s became very clingy to me since turning 2 I’ve noticed always wanting me and will always come to me if he’s unsure were he never really used to be like this.

He is very independent and will make his own fun he will also play with other children but mostly he like to be alone.

I’m worried sick I find myself constantly googling and watching videos trying to peace together weather he’s on the spectrum or not he does have some of these traits but it’s just the waiting game until he gets seen which can take a while I’m hoping to get some advice and if anyone else has been through this and what yous think? I believe something is wrong but I’m doubting myself.

Again I apologise for the long post and if I haven’t made much sense I’ve been trying to write this quickly while running about crazy for my two young sons.
Thank you.

OP posts:
mytinyfiredancers · 26/09/2019 11:56

It does sound like there are some flags for ASD there, just judging on my little experience with a 3 year old with ASD. The rocking, flapping, head banging, tip toe walking, struggling in nursery, covering ears (sensory).

We had our DD assessed, is this something you could look to do? Referral to a paediatrician via HV or GP for the NHS route or contact a private clinic for a paid assessment.

Jud19 · 26/09/2019 13:01

Thank you for your reply!

I’m actually waiting for him to be tested the referral has just been put in about a week and a half ago so it is all in process at the moment. I think maybe the waiting for the appointment is driving me crazy I do believe something is wrong but only in this last little while it’s gradually getting worse (his behaviour) I’m not really sure what I’m doing as I feel like I’m in limbo is he or is he not.

OP posts:
LightTripper · 26/09/2019 14:28

There is a great Facebook group (quite new) that is largely people going through that "limbo" stage (or just through it) called "Nurturing Neurodiversity" - maybe join up there? There will be lots of support and ideas for ways you can help your DS while you wait.

Her YouTube channel (same name) is also really good and has some great videos covering the limbo period and the emotions you go through, what you an do, etc.

In the meantime it might be worth experimenting with some sensory aids (e.g. look up Purple Ella on YouTube, she has a video on her "Sensory Aid Kit" that she and her children use) - maybe headphones would help with some of the noise issues (sadly I always found my DD hated the feel of them more than she hated the noise, but worth a try!)

LightTripper · 26/09/2019 14:29

If you do believe he is likely autistic I also recommend "How to Raise a Happy Autistic Child" by Jessie Hewitson.

Soumia · 26/09/2019 15:22

Try to.push for the diahnosis ASAP as it will help a lot when u start on helping him

Good luck

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