My DD6 has recently been referred for an ASD assessment, which I've been told will take at least 18 months to come through. She appears NT and we only realised the extent of her differences when she had a bout of extreme OCD and anxiety at Christmas. The school stepped in after we went to the GP and got a CAMHs referral, and they have helped with getting her into school/ playground/ assemblies etc. and she seems completely back to normal.
At home, it is different though, with emotional meltdowns, never listening to us, no concept of time so we're often late and mainly, her sleep. She won't let us go downstairs, so one of us has to sit outside her bedroom until she's asleep, which is usually 10.30pm. If we go downstairs, she follows us crying and screaming. She says she's scared - but cannot say of what. Sometimes she says zombies, but I think she's making it up. My DH says absolutely no medication, but I feel like I have no life - we have to eat our dinner on the stairs. We can't really go out. We don't see each other. In the middle of the night, she comes into our bed - we are both asleep and every single morning we wake up with her there. This part is manageable, but now she's being asked to go for sleepovers at her cousins and best friend, to which she can't go.
And we have had no practical help from CAMHs who haven't sent the referral questionnaire to the school yet (although the school now don't see any of this, so I fear it may skew the findings).
Does anyone have any experience of this? what can she be afraid of? She wants to stop being scared herself. how can we help her? We feel so stuck.
Thanks