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Original poster

It has just dawned on me that 2 of my children have sn

35 replies

mummy2aaron · 24/07/2007 16:47

After speaking to my HV today and her telling me she has the report back from DD's SALT and she has been described as having severe problems, it has finally dawned on me that she has problems, I thought she was 2 and probably just a late talker as her elder brother has asd and takes a lot of controlling. I thought really it was her bid for attention. I am very tearful. Not self pity hinest I can hope she hasnt changed it's just so sad.

OP posts:
2shoes · 24/07/2007 17:23

aww sorry to hear that. sending >>>

Original poster
mummy2aaron · 24/07/2007 17:49

Thanks hun, not sure why I am so upset i have expected it really.

OP posts:
aloha · 24/07/2007 17:49

How old is your dd? Is she only two?

Original poster
mummy2aaron · 24/07/2007 17:51

2 and a month yes.

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aloha · 24/07/2007 17:52

She's very, very young still. What are her problems? How is she otherwise?

Original poster
mummy2aaron · 24/07/2007 18:02

she is fine in other ways she helps to get dressed/underssed and with nappies she is aware of when she needs a wee in fact we are potty training. She can understand simple instruction like get shoes/coat etc. Also her imaginative play is ok she can pretend to feed a dolly and put sunglasses on, she makes a lot of noises where words should be used. She is on the other hand getting a handful, throwing food on the floor, juice on her and laughing while she is doing it. Throwing toys and pushing her brothers lego towers over. Major drama queen episodes when told no, throwing herself on the floor and sobbing.

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aloha · 24/07/2007 18:05

Then she sounds a completely normal two year old in every other respect! Her tantrums might be a bit worse because of frustrations over her speech.
What did the SALT say might be the cause of the problems? Any ideas?

Original poster
mummy2aaron · 24/07/2007 18:07

she didnt say anything about a cause, just that she may never be able to talk properly, i was surprised at the time she could predict that

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aloha · 24/07/2007 18:10

Really? Do you know why she said that? YOu must be in shock.

NAB3 · 24/07/2007 18:11

We were told our DD wouldn't walk until late. She was 13 months. I really don't see that a HV can say a child won't talk without huge proof!

NAB3 · 24/07/2007 18:12

They shouldn't be allowed to make predictions without something to back it up.

Original poster
mummy2aaron · 24/07/2007 18:13

no i don;t she should really have explained in more detail there is no follow up appointment or letter confiming what was discussed. dh wants to go for a private salt appointment but he was in denial about ds2's autism for a long time too.

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Original poster
mummy2aaron · 24/07/2007 18:13

Gosh Nab none of mine walked before 14 months and I have 3.

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NAB3 · 24/07/2007 18:16

I don't mean that 13 months was late. More like nearer 2 as she did have some problems. I jusy meant that "professionals" don't always know.

Original poster
mummy2aaron · 24/07/2007 18:18

maybe i should get a private SALT appointment for her then

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sunflowervalley · 24/07/2007 18:20

mummy2aaron-As aloha said she is still very young.

My DS had a speech delay at that age and only said a few words which others could'nt understand.
He was diagnosed with Dyspraxia by an over bearing HV.
I knew after reading up on dyspraxia that this just was'nt right.
He is now 5 and has been since diagnosed with selective mutism.
His speech has come on leaps and bounds.

Your DD sounds just like my Ds at that age and I would get a second opinion.

Original poster
mummy2aaron · 24/07/2007 18:24

thanks sunflowervalley, it would halp to have a name iyswim something i can research and get as much info as poss on, then i wont feel so hopeless.

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Mercy · 24/07/2007 18:32

Sorry, I haven't got any advice but have to say I'm surprised at your HV's feedback. Have you seen the SALT's report for yourself? Can you ask for a copy?

My ds was a late walker and talker - in fact your dd in other terms sounds more advanced than my ds was at the same age.

He's now 3.5 and seems fine on the whole.

sunflowervalley · 24/07/2007 18:43

Please don't feel hopeless,I know that it is difficult not to but one thing I have learnt in my experiences is don't get hooked up on worrying could it be this ,could be that.

I used to frantically search the web for answers and the HV is way out of order to have said this to you without the knowledge to back it up.
In her profession she should know better than to worry you and leave you without any of the answers.

As I said the HV I had at the time got it completly wrong and caused me months of upset.

Ask for a second opinion and don't let them fob you off ,I found a mothers instinct is the best their is.

Original poster
mummy2aaron · 24/07/2007 18:48

ok thanks for that, i had begun to think i was fooling myself she was just late. i will get the second opinion and she starts nursery 3 mornings a week in september so maybe i should give her some time there with other children her age before worrying too much. it will either bring her on or not.

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mymatemax · 24/07/2007 18:52

Sorry you have had this news & especially delivered without explanation or support. Can you ask for the SALT to give you an explanation, even if appnts are scarce they should be able to find 5 mins to talk through the report on the phone.
Does your dd have a paed, I am sure if they receive the same vague report they also will want more info.
FWIW when ds2 started nursery at 2.5 he had no speech, no animal imitation noises etc although his understanding was only slightly delayed. He is nearly 5 & although still problems with intelagibility (sp) he has improved so much we could never of predicted such a change.

hels9 · 24/07/2007 19:27

Like the others, I think you should ask for more details or get another opinion. It seems unreasonably young to be saying your child will have a lifelong problem with speech - I know plenty of children who didn't say any recognisable words at 2 and 1 month (including both of mine). Surely to be so confident that her difficulties will never improve sufficiently for normal speech, there must be some physical problem with her mouth or tongue?

mummytosteven · 24/07/2007 20:09

mummy2aaron - I agree with everyone else - 2 seems very young to be giving such a grim prognosis, particularly since you feel that your DD understands you and has good pretend play. As I understand it, in up to 60% of late talkers (i.e children with delayed speech before 3 years of age), the problem just resolves itself by around the age of 3. Like hels9, I'm wondering whether there might be some sort of physical problem?

My DS has big speech problems - he is 3.4 - nobody has ever suggested that he won't catch up at some point! Whilst nursery didn't really bring on his speech, it has been a great help in getting him used to fitting in with the group re:activities/snack time etc.

the hanen, ican and afasic websites are good sources of info. The afasic website should have info about dyspraxia as well.

mummytosteven · 24/07/2007 20:09

BTW a private SALT assessment is likely to cost about £100

Original poster
mummy2aaron · 25/07/2007 06:56

thanks, i will read up on dyspraxia. we have had hearing tests and sh has has her mouth looked at but nothing very intrusive.

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