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Parents of two autistic children: please come and share

5 replies

Batna · 02/02/2019 13:05

Hello mumnets

I am a mother of 2 autistic children aged 5 and 4.

I would like to share experiences, ideas, advice on how do you manage the behaviour/needs within the family especially if there are other siblings/children who should not be affected by their behaviour/needs.

Please share your experiences...etc..

Thanks

OP posts:
Daffodils07 · 04/02/2019 14:47

I have 2 children with asd although there much older then yours (18,12).
My 12 year old as well as asd has moderate learning difficulties,hypotinia and dcd.
He goes to a sen school and is doing really well there.
My 18 year old goes to collage but does a special course to help him with social skills, how to manage when out and about (he finds it extremely difficult to go out alone and impossible to talk to any one he doesn't know) but he is better then a year ago.
It's hard it really is at times, I do have other children and my youngest son has his own issues.
Young carers have been brilliant and have helped the other children enormously.
Feel free to pm if you need a chat.

Bebstar123 · 06/02/2019 07:56

Hi, I've a nine year old with an ASD and dyslexia diagnosis, probably dispraxia too. My near four year old is waiting on a diagnosis, hopefully soon as we've just had a note to say that he's been transferred to a private clinic to help with NHS overload. His care needs are far greater than his brothers were at the same age so I'd be very suprised if he wasnt diagnosed.

I have two other children aged five and two who aren't on the spectrum, plus a step son who's with us with at weekends, so definitly interested in how people manage various needs and commitments.

springhappy · 08/02/2019 22:30

Hi I have a 15 year old DS who has asd and dyspraxia, he is homeschooled - deregistered from mainstream when he was about 11.
I also have a 3.5 year old DD who is in the autism pathway likely to be diagnosed in the near future. She presents extremely autistic to me, but not as severe to others as she can mask her behaviours/stims at times. Her communication is not good and her eye contact is almost non existent. Again she's better with others though, she tries more.
I also have a 5 year old dd who is pretty much NT - but struggles with sensory issues and routines. We haven't sought any help for her (as yet) as school haven't flagged anything and her social skills are very good so far. To be honest I think she struggles with ADHD type behaviour as she bounces of everything all day and struggles to focus.

Life with multiple asd children can be so challenging! I honestly struggle to cope.
I find doing simple things help like walking in the beach.
Oh and I am also awaiting an Asd diagnosis. Smile

BollocksToBrexit · 08/02/2019 22:41

I have 2 but they're 20 years apart. DD(25) is now an English teacher and doing really well. I'm so pleased for her as she was a bloody nightmare growing up. I still have to support her quite a bit. Endless messages 'have you done this, have you done that, don't forget to ...' But it's getting less as she's settling in to adulthood.

DS is 5 and a little angel. He's so gentle and kind and well behaved. He's such a happy sunshine that everyone wants to be his friend. He's completely oblivious to this. He wants to be a scientist when he grows up and has his eye on a nobel prize already. (We visited Alfred Nobel's house and lab and now it's all he talks about)

springhappy · 09/02/2019 00:05

@BollocksToBrexit I love all the positives in your message :) it's lovely when you can enjoy how special some of the traits can be. I just wanted to share that it got so much easier looking after ds as he got older (although I think we just learnt how best to keep him happy and not overloaded)

Also I wanted to share that all my dc have their own space as they very much need 'quiet time' but occasionally they sit together and actually communicate in the most beautiful way. They are completely in tune with each other in ways that nobody else gets them.

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