Hi everyone.
My ds has spina bifida hydrocephulas neuropathic bowel amd bladder. Wears splints to walk.
Went to do his washout tonight and just as we starting he looked upset I asked him what was wrong and he kept saying nothing. I tried to change subject and light heartily said how was school who you play with today he said no one speaks to him in his class. He no friends. I asked why and has anyone said anything nasty he says no they just don't speak to him .
I tried talking to him about ways we could help he does find having conversations hard, he also doesn't pick up social cues well. We had a talk about him being different and how does he feel about splints, washouts, shunts etc he finds the hardest part the memory loss and and sometimes gets very confused and hard to follow what's going on.
Sorry for such a long rant I really just needed to get that of my chest if anyone any advice id appreciate it.