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Childminder has terminated contract and I'm so frustrated.

20 replies

MummytoCSJH · 22/12/2018 16:44

My son is suspected ADHD and has been for about 2 years - all of my childcare providers (including the nursery attached to the school he is at now) in the past have been concerned about this and asked me to go to the gp, however the gp has referred to paediatrics and camhs to no avail as he is too young (4, 5 in may) and they have just said speak to my health visitor, who apologised and said there isn't enough funding for anyone to do anything. My childminder called me late last night and said she is going to have to end our contract with immediate effect as my son's behaviour is too much for her to cope with, she cannot leave him alone at any time and it's not fair on the other children she looks after. She has an older son who is diagnosed with ASD and ADHD, so I never thought she would do this to me. I am in university full time and I'm going to struggle to find childcare after Christmas as it's halfway through the school year everywhere is full and some places that aren't don't do the hours I need. I have no support from the doctors or my son's school and they say without a proper diagnosis they can't put anything in place despite seeing the issues - again, no assessment is just due to age. I've asked childminder to write a letter detailing the behaviours she has seen in my son and how it affects him every day but she won't and just said I can pass her number along if someone wants to call her - yeah, as if they'd bother.
Everything is always so intense and it has been for years and I can't believe this has happened. He is violent when things don't go right or a change in routine (ie non uniform days or not walking over a grate the right way!) and very strong and when he has a meltdown banging his head on the floor or wall, throwing things and crying or screaming I can't do much to stop this due to my own chronic pain and his strength. Less than 6 months ago my son killed our hamster by throwing it across the room when it was running in its ball, I had no idea why, he just snapped all of a sudden and did it. I've completely just had enough of being told he might grow out of this behaviour or its due to sleep (he sleeps well and is in a good routine). I'm considering paying for a private assessment but god knows how much that will put me out which I can't really afford as it is but I really dont know where else to turn.

OP posts:
imip · 22/12/2018 16:48

Sounds like ASD to me. Go straight to your GP and demand a referral. You could also try a nursery and apply for an ECHP. Flowers to you. My child was not accepted on the ASD pathway until she tried to cut her wrists at 6 years old. Please harp on about early intervention. Pisses me right off to hear examples like this...

heather1 · 22/12/2018 16:50

Is he a mouth breather. There is some new research now out about this ADHD and lack of deep sleep. Might be worth investigating.
You have my massive sympathy Op.

MummytoCSJH · 22/12/2018 16:57

Thanks imip - I'm going to try another gp after Christmas but knowing my surgery it will be a 12 week wait for an appointment at which they say he's already been referred :/

Heather my health visitor mentioned that at our last appointment actually, my son does have issues with his ears and sinuses due to having meningitis as a baby and so is under a consultant, I asked for an appointment about 4 months ago which is on 31st Jan (finally) when I will mention it. It doesnt help that one of his grommets has fallen out and they refuse to put it back in, saying to wait and see if it will solve itself naturally (it won't, hence the grommets in the first place). I think they fob me off loads because I'm young though I try to be assertive.

OP posts:
Medicaltextbook · 22/12/2018 17:02

I’m so sorry this has happened and particularly that the childminder hasn’t agreed to write something to provide independent evidence of the difficulties that your son has. Flowers

Geneticsbunny · 22/12/2018 17:45

We had the same thing happen to us and it turned out to be good eventually. We ended up sending our son to a really good nursery and they were able to assess him and get an ehcp in place before school started. They gave him lots of support in the mean time

PathOfLeastResitance · 24/12/2018 07:37

This all sounds really tough on you both. If you are worried that you will get fobbed off then write a list of your concerns and what you have witnessed and how this impacts on you both. Use your list in the consultation. By writing it all down you will also be able to organise your thoughts to really make the use of your time slot. Good luck.

Molly333 · 24/12/2018 07:39

I agree go first then university they must help here adapt yr timetable

MummytoCSJH · 24/12/2018 08:42

Thank you all. I did try writing a list before but I'll do so again adding all of that in. Unfortunately Molly they can't. It's a very demanding science course, it changes every week because of which labs are available etc and only a very small cohort as it is so not like there are alternate groups or anything like that. If I'm having difficulties I won't go but it does make it harder for me as I need to record the lectures due to my own disability and I need to be in the practical classes as usually they can quickly recap but if you miss it, you've missed it and need to learn yourself without being able to actually do it. This has all been fine, and I won't be leaving my course, I'll find a way but it's just demeaning being a young mum, with a chronic illness, I've worked so hard to get to where I am for my son to have a better future and yet things like this just make everything so much harder, especially losing support systems you thought were doing well.

OP posts:
SexNotJenga · 24/12/2018 08:53

I would ask for a re-referral to CAMHS, but without mentioning ADHD. There's not a lot of detail in your OP, but what there is fits a few different possible situations.

Re: ADHD. They won't diagnose it before age 7 in this country because the symptoms of ADHD are within the range of normal behaviour in young children. This is why you would have got nowhere when trying to seek a diagnosis for a 2 year old. You should also be aware that the first line treatment for ADHD-type symptoms is attendance at a parenting group. Lots of people get a bit upset by this, but it's not personal, it's the recommendation because that's what gets the best results.

Branleuse · 24/12/2018 08:56

You can get AsD diagnosed earlier than that. I dont know as much about adhd, but from what youve said id be looking at asd anyway.
Can you defer yiur course for a year?

SexNotJenga · 24/12/2018 11:49

I know you can get ASD - and many other conditions - diagnosed earlier than 7. This is why I recommended that OP go back to CAMHS without a specific diagnosis in mind, and let them do a general assessment.

MummytoCSJH · 24/12/2018 21:06

Thanj you for all of the helpful information. I cant unfortunately branleuse, I've already done it once due to a few things - my own medical condition and recovery from a surgery in March means I can't work full time and I can't survive on nothing, I'm already a few years behind due to being ill and having my son young and it would affect my student finance due to my age and my partners income.

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Allthewaves · 04/01/2019 17:59

You can apply for an echp without a disagnosis. My son's were referred at six, waiting list was around 11months. Diagnosis criteria is changing. You can apply for dla on basis of symptoms.

Day care coped best with my boys as lots of staff and outdoor space. But you may find you need 1:1 care

Viewoffriday · 04/01/2019 23:50

Do you have a local sure start/local authority run nursery (not a school nursery though) ? They are so much better placed to look after children with special needs and they are often a great way of accessing the diagnostic pathway.

Fairylea · 05/01/2019 08:48

You don’t need a diagnosis for an ehcp and can apply for one yourself without the schools support. Contact your local council. I did this and pushed and pushed and got my son into a specialist school.

I would also push for an asd diagnosis rather than an adhd one. People tend to see adhd and be very unhelpful, even the dla seem to be cutting down on awarding dla for adhd. It’s not fair but in order to get the help you both need that’s what I would do.

MummytoCSJH · 05/01/2019 10:30

Thank you Waves and Fairy, I'll definitely look into that. Friday, my son is at school already and is of proper school age in September so I can't take him out to go into a nursery :/

OP posts:
Allthewaves · 06/01/2019 00:01

The day care I use takes children up to end of primary - will drop off and pick up

MummytoCSJH · 06/01/2019 00:41

Well the childminders near me do but still I've the issue of finding one with slots every day who does my school this late in the year. I've spoken to a fair few now who either do drop offs at different schools or only have places 1-2 days a week and I've contacted the nearest 4 nurseries and none of them do drop offs, it's full time places only. There is a before and after school club but I don't think it opens early enough or closes late enough because my commute takes me 1.5 hours and sometimes I start early and don't finish until late :( I've arranged hours here and there until the end of Feb with family and friends so I guess I've got until there to find someone! I really wish I could afford a nanny as my son probably would benefit from 1-1 care at home as he does have some issues with change and routine but even the cheapest ones are almost triple the price per hour I was paying my childminder. I really can't afford to give up uni either as it would screw me not only because I'd still be in student debt but I'd never be able to get the finance to go back and I'd never be able to get a good job without a degree.

OP posts:
cakesandtea · 07/01/2019 21:50

Childminders to my DS said exactly the same thing almost word by word when he was 6. I couldn't find any childminder willing to help as they all spoken to each-other. In my experience you don't get any luck with private providers. You need to find a publicly funded place. Talk to HV, sure start, find out about public after school care in your wider area (i.e. not just your village, but district, it might be some distance away). As View said, they are much better for children with SEN and disability.

Try to find some council run after school club, even for disabled children. Are there other schools in the area with after school care?Get your DS there. You may need to ask for a taxi to be arranged to pick him up. All council are supposed to have "local offer" on their websites, where there should be some offer of childcare for children with disabilities. Contact them and all people that can help you to get your DS there. Consider even moving DS to that school. Look at which local schools are good at meeting needs for ASD. Don't attach yourself to posh indicators of school 'goodness', they may not do anything tangibly useful for your DS if indeed he has ASD and ADHD. You need the school that will make SEN provisions, provide childcare and enable you to finish your degree.

Your DS sounds like ASD with possible ADHD. Write down your observations of behaviours and problems, keep a diary every day of what happens at school and at home. Give a print out to the GP and demand an urgent referral re ASD. Use the childminder refusal and the hampster incident to stress the urgency. Ask the GP to write to the Pediatrics again stressing urgency and new information, so they would prioritise him.

It is not correct that the school needs a diagnosis to start support. To the contrary, they need to start addressing difficulties they see regardless of diagnosis. See the Code of Practice for SEN, I am afraid you will have to become very familiar with it. Meet or write to the Senco show her the code of practice [literally hold it in your hands and open on the relevant page] and quote the relevant paragraph number X.XX. She needs to see that you are clued-up.. sadly. They may be arguing that they don't see any difficulties, but that is because due to funding they are trying to kick everything in the long grass they don't recognise what they see as sign of a SEN or disability. They may be mislabeling it as poor behaviour, being disruptive, being non academic, whatever. Your job is to learn all various ways ASD and ADHD can manifest itself and carefully catalogue, file every daily incident under the potential ASD/ADHD symptom, keep a daily diary. Talk about it to the school and ask to put support in place. Your DS's outbursts might be symptoms that his needs are not met, he might become more calm with the right understanding and provisions.

I would not defer uni in your place, as ADHD and ASD don't go away, it does not get any easier, every year new challenges emerge, so I would say the escape is in running forward,, IYSWIM. Try to find a suitable after school care that will work in long term and finish your degree.
I have 2 DC with SEN, ASD, ADHD. It is a struggle for life, it is draining and stressful, and at every turn there is a new challenge. So it is important to look after number 1, you. Do what is important to you, to feed your energy, emotions and sense of self. Your degree is clearly important for you, quite rightly. Don't second guess it. It will give you energy and confidence, and hopefully money. Just hang on and find an after school care that will accept your DS for the long term.

FlowersBrew

April2020mom · 08/01/2019 17:15

I also had the same experience with finding childcare for DS. It was a nightmare honestly. Care.com has a decent selection of special needs childcare. Start with there. It took me a few months to find someone who can come babysit my kids. My son’s birth defect scared some possible candidates away. I had to use my mom as temporary childcare whilst I searched for applicants.
Thankfully the neighbors were happy to babysit. I also spoke with his therapists for recommendations and advice. Interviewing all of the respondents to my advert online took several weeks.

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