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SN children

Here are some suggested organisations that offer expert advice on special needs.

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Original poster

DLA for asd query

15 replies

dlaquery · 18/06/2007 20:55

Sorry I have had to change name but know people on here in rl and don't want them to know my financial business.
I completely understand if this is too personal but was really wondering what the general level for dla most people get when their child has asd.
I know that asd is a wide spectrum. My dc is quite hf and gets medium rate care and low mobility although lots of my friends whose children have similar needs are getting high for both.
Again apologies for asking such a question but would really appreciate if anyone would answer.

OP posts:

electra · 18/06/2007 20:59

This reply has been deleted

Message withdrawn

coppertop · 18/06/2007 21:13

From 3yrs-6.5yrs ds1 was getting medium rate care. He now gets higher rate care and lower rate mobility. He needs extra help at night that was probably seen as not too unusual at 3yrs but at 7yrs old is no longer a typical need. I think lower rate mobility is the right rate for him. He does have difficulties with getting around (mainly due to poor co-ordination and not being able to judge where he is in relation to other people/objects) but doesn't meet the criteria for higher rate IMHO.

Ds2 is 4yrs old and HF and has received higher rate care since the age of 2. He needs a lot of supervision at night though.

onlyjoking9329 · 18/06/2007 21:35

my three all get DLA care high rate, 2 get high mobilty other one gets low mobilty, Guess which one has the most needs. yep the one who gets low rate mobility, her twin sister get high rate thou

mum2jc · 18/06/2007 21:37

My ds gets high rate for personal care but nothing for mobility at present. I think i will push for it this year though as i really don't think he is as able as his peers. He has NO road awareness, poor coordination and balance and is so easily distracted we find it difficult to get anywhere. Does anyone know what our chances of mobility are??

onlyjoking9329 · 18/06/2007 21:39

how old is he?
does he have a DX?

mum2jc · 18/06/2007 22:12

OJ. Yeah he has had dx since age of 3, autistic with gross motor delay and hypermobile joints. He was 6 in feb..

gess · 18/06/2007 22:13

ds1 (8 years old, severely autistic, non verbal) gets higher rate care and mobility. He's had the care component since 3 and the mobility from 5.

Graciefer · 18/06/2007 22:51

DS (4yo) gets both higher rate care and mobility.

Awarded from 2006 until 2015.

He orginally got middle rate care and no mobility as we didn't apply for it, a year later we asked them to look at the claim again on the advice of our paeditrican, they said to resubmit the forms which we did, from here they awarded him higher rate care but no mobility as he was under 5.

We then asked them to reconsider this and provided some extra evidence, they then awarded him the higher rate mobility.

In hindsight perhaps we shouldn't of accepted the original decision, but this was around the time just before his DX and we were just trying to come to terms with everything.

From what I have read, we are lucky to have a long award period, so we don't have to struggle with those damn forms for a while.

mum2jc · 18/06/2007 23:10

Graciefer. Can i ask why your award notice is for such a long period. I keep having to fill forms every 2-3 years, nightmare. Is your DS autistic?

Graciefer · 18/06/2007 23:27

Yes DS has Autism, was completely non verbal until starting at SLD school last September, he now has a few bits of echolia.

HAs various problems with communtication, socialisation - but by far the biggest problem is his oppositional behaviour and his 'running'.

School only have the resources for him 3 days a week as he has to have 1 on 1 support at all times for his safety and the safety of others.

Not sure why we got the long award, but I did include every report I could lay my hands on, Portage, paeditrician, clinical and education psych's, SALT, all the reports from his assessment placement at CDC etc. You name it, I sent it to them.

If I knew exactly what helped get the long period I would definately pass the info on, as I know what a pain the forms are having done them a few times.

gess · 19/06/2007 08:36

graciefer it might be the school he's in. This is the first time I'm applying since ds1 has started at that school but I've noticed that with say SS it seems to carry quite a lot of weight (i.e. they realise that needs must be high if he's at that school iyswim).

Graciefer · 19/06/2007 08:42

Yes you are probably right Gess, I forgot that on asking them to reconsider the last time, his teacher JM also did a report for us.

Bus just left? I have just came in from waving the whole bus off to school, heheheh

gess · 19/06/2007 08:50

snap

jenk1 · 19/06/2007 09:06

we have just been reawarded for ds until 2012.
i asked for a reconsideration because he gets low rate mobility yet we cannot take him anywhere without the use of transport as he runs into roads,stops to pick things up etc but they have kept it at the same.
i know other parents have high rate for their children with PDD/AS so im wondering what to do really.
whether to appeal or not.

tibni · 19/06/2007 13:37

At time of dx ds was awarded middle care and nothing for mobility. He was 3 and I was too shell shocked to really look into the whole DLA thing. At 5 he was awarded middle care and lower mobility which I appealed. He now gets higher level for both.

DS is essentially non verbal, a runner, has learning difficulties, sleep difficulties and severe ASD.

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