Little bit of advice please - Piedro wearing!

[slightlymad]

Hiya,

I've posted about piedro boots before...but just wanted to ask you all something.
I have just got DS's 2nd pair of piedro boots - but have put them to one for a couple of weeks for when he starts school. He is still wearing the ones he's had for 8 weeks now.

HOWEVER.....I have just started to notice that his ankles (especially his left one which is his worst) have started to roll inwards even when wearing the boots. Is this because they are wearing down? I thought the boots would be able to provide support for longer that 8 weeks without weakening at the ankle?? I've tried lacing them up tighter but it is still happening. It stood out most when I looked at a photo I had taken of him and you could really see the turn on his foot/ankle.

Just wondered what your thoughts are? Does he need the new ones NOW - or am I ok to wait it out another week and a bit?
Also - if this happens again with the new ones after a short time - am I able to request a new pair when he's already had 2 pairs in 3 months!!!!
Surely the support has to be right for them to be worthwhile??

Just bumping this up as I'm still unsure what I should be doing!
I'm new to piedro's so not sure what to expect!

We had the same problem with Ds and DD1 with Pierdo boots, in the end they had to wear splints to give them the support they needed, sorry I am unsure of your son dignosis, but my two have CP

hi Mieow,

Thanks for your reply.
ds is wearing them for hypermobility. I don;t think I have ever posted his full diagnosis on here - but here it is:

Total Anomalous Pulmonary Venous Drainage, (Obstructed Infradiaphragmatic
Connection),
Large Atrial Septal Defect, (patched with - Bovine Pericardial Fenestrated
patch)
Medium Patent Ductus Arteriosus (all repaired June 2000),
Mild Tricuspid Valve Leak,
(All heart defects)

Verbal & Oral Dyspraxia,
Sensory Integration Dysfunction,
Immunocompromised (subnormal IgA, IgM, IgG
no response to 3 HIb vaccinations/ 3 pneumococcus - under immunology in Manchester)
Suffers with recurrent chest, ear and throat infections,
Hypermobility, Low muscle tone, Flat feet (Wears Piedro boots for stability with valgus inserts)
Allergic to Citric Acid/Citrus fruits, Tomatoes and Tartrazine.
Gastroesophageal Reflux.
Pelvic Tilt. (1 leg hangs an inch longer, one foot a size larger)

It now also seems he has vocal cord damage from his last broncoscopy and he has a permanently hoarse voice.

DS is in the basic boot - I wondered if maybe I should ask for the stability boot next time? Is that any stiffer in support? Or should I be asking about splints?
When he's out of the boots he can almost stand on his ankle. He is sooo floppy - and very amusing to watch on a trampoline!!

DD had the little boots first with a cat on them, and then we got the second stage boots, very firm and good with support, unforturely, they weren't enough for her as her feet roll too and she now has AFOs, with DS the boots couldn't hold his ankle down as he has very tight ankles and walks on tiptoes, so he has had high DAFOs for 3 years now.
Soory can't be much help, maybe you need to go back and ask about firmer boots or splints

Yeah - maybe I do.
DS also walks on tiptoes when out of the boots.

I'll ask next time I get chance, thanks very much.

Slightlymad, personally, I would call the orthotist and maybe the physio, as soon as i noticed any change or development - which the rolling inwards is. REcently we have been seeing the orthotist in conjunction with the physio, and she comes to the orth appointments - this is quite helpful and helps refine what the ortho does. Don't know if that would be appropriate / possible in yur situation.

Also - ask the physio about trampolining - because I think somone on this board said they had been advised not to use a trampoline with hypermobility.

Good luck....

my daughter wears the stability boots too. I noticed that her feet were rolling and with her it turned out that she was in the wrong width fitting. She needed a narrower boot so that was ordered. they also said if it carried on happening she would need a small splint adding to her heel cups, but so far so good.

Dont worry about keep taking him back to the orthotist, I knew mine very well. I even bumped in to him when I went on holiday once very strange!!

the trainee othopaedic surgeon said she would need calipers! It frightened me to death, turned out he meant a splint

Thanks for your messages....
DS starts school on Friday - so i'll get him in his new boots and "watch" for any changes in the next few weeks.
If these new ones do the same - i'll get straight back onto the orthotist.

Also - does anyone know the difference between these boots?? I looked up the code number inside DS's on the gillbert and mellish site - and his are basic boots...but what is the difference between basic and stability?

DS is currently in casualty with his dad after loosing control of his little push along car thing and smashing his face on the pavement!
All his eye is swollen - his head is huuuge and cut and his lip is literally like a golf ball.
Been there for 2 hours now and not heard anything - so I'm on pins slightly!!!
(Sorry - this is nothing to do with the thread title!!!)