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DS can't play with other kids without grabbing/pulling/squeezing/generally mauling them...

14 replies

PutItAwayDear · 21/08/2018 21:35

DS is just 8 with suspected ASD, also possible ADHD and sensory processing issues. He's very verbal and super sociable and desperately craves friends and the company of other children but struggles so much to play appropriately even when supervised and closely supported. He needs to spend more time outdoors burning off energy but finding ways he can play with other children is so hard....

He loves detailed imaginative play involving making up games about dragons and knights etc but we just can't find any other kids who are interested in that sort of play Sad

When we do get together with other kids he constantly touches them, grabs them or their clothing, gets them in body bind bear hugs, chases them down to jump on them... The list goes on and it is all he seems able to do not matter how hard I try to channel the energy into games or activities. He gets all hot and red and zones out a bit, completely fails to recognise when he is being asked to stop (by child or intervening adult) and frequently ends up having to be physically removed from play situations which isn't nice for him at all.

We try to involve him in other games but he struggles to join in a lot of outdoor games (poor coordination and can't catch or kick a ball properly yet) and just about everything we try ends up with him sitting on other children or attempting to turn the game to his current favourite "ultimate takedown" (something he's heard at school, I have no idea where it's from but I'm trying hard to discourage it).

He just wants to play games he's invented but he's so rigid about the rules that they're impossible for anyone to play to his standards. And I don't know how the hell to help him socialise with other children - something he is desperate to do and gets very upset when he can't find anyone to play with or invite to parties etc. He's been like this since he was very young and despite lots of effort I just can't seem to find ways to stop the constant grabbing and touching and squeezing and it's meaning that children no longer want to play with him Sad He's very articulate so I can and do explain stuff to him and he does understand why other children dislike it on one level but can't put it into practice at all.

I know there's no magic answer I'm just having a bit of a weep after another attempt at playing in the park with some friends children (who he knows and likes) was a constant round of me having to police him to stop him dragging them to the floor or jumping on their backs and watching them try to get away from him and how wary they all are of him is heartbreaking. DS is actually very kind and gentle most of the time and none of his rough play is with the intention of causing harm or hurting them but he just can't make the connection.

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Marshmallow09er · 21/08/2018 23:34

That sounds v like my DS (9, ASD and ADHD).

It sounds likes he's seeking proprioceptive feedback when he's getting overexcited.

So a good way to help him stay regulated would be to provide him with the input he's seeking through regulator sensory stuff - like squashing, hanging from things, squeezing into tight spaces. Space hoppers.
Obstacle courses work well.
Bike riding has been v helpful for us now DS has finally mastered it.

That said, there are still situations he can't cope with and generally that's anytime there's more than one other child his age to play with. It always descends into him pulling them down / grabbing them etc and once he's gone into that zone calming him down in the same environment is impossible.

It does mean I have to pass up opportunities to see friends with kids that I just know will be too stressful for both me and him (altho he feels like he's enjoying it at the time which is v tricky - but he's just manic and upsetting the other children). Plus I'm on constant watch so it's not enjoyable for me either.

Structured activities, quiet places (like a walk through the forest with lots of trees to climb) work best.

It's one of my biggest challenges tbh - DS constantly pulls DD down and it's really hard to manage. I posted on another thread recently how he likes the feeling of her struggling to get free / wrestling him and how I haven't been able to find a way to replicate that artificially for him. He seeks her out when he's bored - it's been hard work over the summer.

A body sock was suggested so I'm going to give it a try.

PutItAwayDear · 22/08/2018 08:27

Thank you, that's really helpful. We are actually going for a sensory assessment next week (private) so I'll discuss it with the OT as I hadn't thought about the sensory side of it. Now you say it, it makes perfect sense and I'm sure that's what it's about. We can definitely work on some more appropriate ways to channel that need!

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HairyMaclary5 · 28/08/2018 20:45

OP, I found myself getting teary reading your post. I could have written it about my 4 year old - every part of your post rings true for me. I know it's no consolation but it's good to know it's not just us going through this......it seems like every other child we interact with is perfectly behaved and forming good friendships with peers whereas mine is desperate to play but the other kids just run away.

How old was your son when he started behaving like this with other kids? What's he like at school? Mine goes next year and totally dreading it already!

I'm at a loss how to get the message to sink in, that if you are rough with other kids, they won't want to play! And it's hard to punish as they are doing it for the right reasons ie wanting to be friends and not just being aggressive and lashing out.

Hard to know where to go for support, particularly for a pre-schooler.

PutItAwayDear · 28/08/2018 21:35

Well, I bought a body sock and a peanut ball (like a gym ball but... peanut shaped Grin) and DS bloody loves both of them! He's spent over an hour using each of them today and I'm going to try and channel that pushing squeezing squashing energy into using them every day.

@HairyMaclary5 it's so hard isn't it. DS has basically always been like this but it's in the last couple of years that it's really started to look out of kilter with his age. Despite him being incredibly verbal I just cannot get the message to sink in that other people don't like being sat on! It's like the shutters come down and the sensory feedback it gives to DS overrides any social skills he has. I'll report back on whether the body sock and peanut ball make any difference over the next few weeks.

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lorisparkle · 28/08/2018 21:46

As well as all the fab sensory ideas, have you looked at ‘social stories’. Ds1 really benefitted from one when he struggled to wait in line without ‘handling’ the children near by.

HairyMaclary5 · 30/08/2018 13:02

OP, I definitely agree about the shutters coming down. It's like they go into their own little world and are just unable to control their actions.

How is your son at school? At what age did you suspect ASD? I'm finding it very hard to get advice or help when my child is not at school age yet. Hard to know whether this is a problem or just something that will grow out of.

I'm off to google body socks and social stories!

PutItAwayDear · 30/08/2018 21:41

He's not great in school and since April has only been in part time. I've known since he was a baby that he is on the spectrum but because he's always been super verbal and communicative (plus being August born which was blamed for everything I was worried about for years!) nobody took me seriously until he was about 6.5 when it becane increasingly obvious that there was a widening gap between him and his peers in terms of social skills.

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HairyMaclary5 · 31/08/2018 06:31

I just wonder if I'd have noticed some signs before now - she was a perfectly normal baby and toddler and really only started to have behavioural and social issues from 3 onwards. If it was autism or something similar would it not have been apparent earlier?

What a shame it took so long for diagnosis, that must have been hard for you all. It's so sad when you see other kids forming friendships but your child is on their own when they are so keen to play with others. That's the hardest part for me.

PutItAwayDear · 31/08/2018 22:19

We still don't have an official diagnosis! In this area the only way to get a diagnosis is via a multi disciplinary team with a 22 month waiting list for an initial appointment - we are 6 months into the wait Shock

DS has been seen by various people (audiology, occupational therapy, paediatrician, SALT, special needs advisory teacher etc) who have all agreed we will get a diagnosis of ASD when he gets assessed but until that happens we are in limbo. We've managed to pay for a private sensory assessment which has been invaluable but wiped out my tiny amount of savings so no more private anything is on the cards.

I think it can be super hard to spot signs with children who present differently to the stereotype of "autism" that is at the forefront of people's minds. DS had several words before he was 1 and was talking in sentences at 18 months, he has a reading amd comprehension age of at least 13 now... but he can't tell you who his friends are, or understand when someone is not enjoying a game, or stay in school for a full day... All that stuff got put down to his being an August born boy for years despite me knowing it was more than that. But I think the only reason I knew so early was that I have a younger sibling who is severely autistic so I was hyper aware of stuff that I think would pass most people by. I suspect had it not been for my sibling and how aware I was of how similar DS was in many respects from babyhood, I would not have noticed anything until he was maybe 3.5/4.

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PutItAwayDear · 31/08/2018 22:23

And yes it is utterly heartbreaking isn't it Sad DS has a couple of children who he somehow "clicks" with - my cousins boys who interestingly are both very quirky and have a lot of ASD traits but not on a level that would ever be diagnosed. Sadly they live 200 miles away! It's really upsetting sometimes to see how much DS wants someone to play with but can't manage to connect with his peers.

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Marshmallow09er · 01/09/2018 09:48

OP does he have an EHCP? If he's only able to cope with school part time it definitely sounds like he might need one.
How supportive / proactive are his school?

I would recommend applying for one yourself (rather than school do it) and except to be refused by the LA to start, but given the face he's only in school part time you definitely have a strong case and I would imagine that they wouldn't fight your appeal (appealing is easy enough and all paper-based).

You don't need a diagnosis for an EHCP.

PutItAwayDear · 01/09/2018 18:47

EHCP assessment starting as soon as term starts - request was agreed on the last day of term!

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HairyMaclary5 · 01/09/2018 19:01

22 months is a ridiculously long time to have to wait!!!

What were the initial signs of ASD traits OP? And who did you approach first for help?

Digggers · 09/09/2018 19:58

My dyspraxic nine year old is like this too. Constantly has his hand in people’s faces. Tries to initiate play by screaming and flapping at people. Other children avoid him. It’s heartbreaking

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