Hiya, new here..........

[anniebear]

Hiya

Just thought I would introduce myself. I will try to keep it short!!! There is no harm in trying!!

I have twin girls Grace and Ellie who are nearly 3. Ellie had Phneumococal Meningitis at the age of 8 months and was critically ill. She went on to have Hydrocephalus, serious form of Epilepsy and brain damage to the right side of her brain. Now CP is also being queried as she has a slight limp.

We got told if she survived that she would be severely brain damaged.

I am glad to say she is proving them wrong!! She is very behind but is now walking, trying to run!! And she can string around 4 words together.

Have loved reading through all your posts.

I have lots of questions and advice to ask!!!

Hi Anniebear. I'm relatively new to mumsnet too, though can't think how I did without it! So glad to hear your dd is doing well and hope to hear more about her. You will get lots of great advice and support here. I'm sure others will be along later to say hello.

Oh, just for background I have one dd, nearly 2, who has medium/severe learning disabilities and epilepsy.

Hi anniebear. I've only been doing this for a couple of days too. I have a 3year old also called Ellie and a two year old called Amy.

Fantastic about Ellie proving the doctors wrong!!

Welcome to MN

I have four children, my oldest was born with 2 congenital heart defects , hydrocephalus, and GDD ,which is all now resolved. She is 12/12 now. My youngest is 3 1/2 and has CP, spastic dipelgia type, cannot stand or walk, uses a wheelchair. Look forwrad to chatting to you.

must have been a very worrying time for you anniebear, glad to hear ellie is doing so well now, she sounds wonderful. Welcome to mumsnet

i have a daughter who is 4 who has a microcephaly and undiagnosed moderate global development delay

Hi AnnieBear,

Welcome, and ask away.....

Remember though, MN is addictive.....I am waiting for the support group to help me wean myself down to say......six hours a day!

Why don't you go to Beety's MN Summer Party, you will really know what MNers are like then!

Look forward to your posts and your girls sound gorgeous, are you North or South of the Watford Gap?

Love, Bunglie XX

Hello Anniebear, and welcome.
Lovely to hear that Ellie is doing so well - it must have been a horrible time for you. I can't imagine that kind of worry.

I have a DS who has just turned 3 - he has a limp as he has no fibula and one leg is considerably shoreter than the other. Has Ellie seen an orthopeadic consultnt? I believe the big M can effect the growth plates at the end of the limb bones, and cause on elg to be a little shorter than the other. We met the parents of a lovely little girl who was doing very well having come through m, but she has been left with that problem.

Hello Anniebear and welcome, prepare to become addicted

I have 3 children, ds1 & ds2, and a dd who has congenital heart disease and a leg length discrepancy caused by an embolism.

Thank you to everyone for making me feel welcome.

Yes, this is addictive, I took ages reading the posts. Maybe now I will not spend so much on E Bay!!!!

Ellie hasnt seen a orthopeadic consultnt, we are waiting for an appointment to have a spine/hip xray.

I live on The Wirral (other side of the Mersey opposite Liverpool!)

Isnt it unbelievable how may different illnessess there are? These children have the strength to go through so much, bet we wouldn't!!

Welcome Annie Bear, this site and this forum in particular are a godsend, you will never meet a better more generous bunch of wenches ever!
Wonderful news about proving them wrong, she sounds bloody amazing!!!!

I am piff, my dd is 21 mths and has Noonan Syndrome, she has also confounded a few senior medical folks too!!!! There are many far and wide ranging conditions/syndromes on this board, whatever you need, you will find it here.
xx
piff

Hi Anniebear!

Welcome to Mumsnet. I have 2 boys. My 4yr old is autistic and we are waiting to find out whether or not his little brother is autistic too. Glad to hear little Ellie is proving the doctors wrong. Go Ellie!

Hi Anniebear

Welcome to Mumsnet

My dd aged 5 has a speech and langauge disorder. I have found this site very friendly and supportive.

Great to hear that Ellie is doing so well and pleased that she is proving the pros wrong!

Welcome anniebear! Great to hear that Ellie is doing so well

I have 2 dds, 5 and 3. dd2 has microcephaly and global developmental delay.

I've also found Mumsnet very supportive and there are lots of wise souls on here to brighten your day !