Possible microcephaly and CP

[SouthEastLondonMummy]

My DD started having seizures shortly after birth, and now, 5 months later, she is right down the bottom of the head circumference charts. We have been told that she has suffered an extensive brain injury (on the right) shortly before birth, and we should expect a left-sided physical weakness. I have accepted this (the physical diasability). But have been searching on Google and unearthed Micriocephaly, and am TERRIFIED. A cognitive deficit TERRIFIES me. She loves her 2.10 year older sister (giggles when she comes into the room), and is a wonderful wonderful baby, but the future is all hazy for me. Life seems pretty surreal at the mo. I have been in touch with the Independent Advocacy people (NHS complaints) as I think we have a legitimate case against the NHS for failing to diagnose placental abruption, but am in pieces about my beautiful DD. I love her so much, but I have let her down so badly. Plus, doesn't this stuff happen to other people??? (I know the answer to that one!)

Hi SELondonMummy - hope your appointment with the neurologist went okay today.

I have a 4 year old DD who manifests as having CP (left side weakness) and learning disabilities. She does have a little head but her paed and I decided that was down to the fact that I do aswell rather than microcephaly!

Whereabouts in SE London are you? I may be able to help with info on local services.

HeartintheCountry, sorry I did not see your reply to this thread till now. Are you still around???

I am in Dulwich, are you in London too?

Back in June the Neuro said she should be more or less ok cognitively, but no one has measured her head since and I can't decide whether to ask the GP/HV to do it or just leave it as long as poss in the hope that it will have got bigger by the time it's measured. Waffle waffle.

How is your DD? I'd be very interested to hear about how you've coped and so on as it's been a horribly shocking time for us as a family. When did you find out about your DD's hemi?

Bump to attract HeartintheCountry's attention!