CHOCOL8...MrsF .....better late than never.....I hope!!!!

[mrsforgetful]

I am so sorry....time has gone so fast and i've had a few tough dayswhich don't help.

Managed to delete your email...so here is exactly what i wrote on the DLA form about Toms medication......as i am outraged that they are saying that your 6 year old is 'self medicating' simply because he isn't pinned down to take it!
Here's what i wrote:

THOMAS TAKES HIS TABLETS WELL WITH A DRINK- HOWEVER I HAVE TO STAY WITH HIM TO MAKE SURE THAT HE DOESN'T PUT IT DOWN AND FORGET.
GENERALLY,I PHYSICALLY PUT THE TABLET ON HIS TONGUE- SO I KNOW IT CANNOT BE DROPPED.
HOWEVER,THOMAS PREFERS TO PUT IT INHIS OWN MOUTH- SO WE DO HAVE ARGUEMENTS ABOUT THIS FREQUENTLY.
HE NEEDS THIS MEDICATION TO ENABLE HIM TO MANAGE AT SCHOOL- IT HELPS HIM TO CONCENTRATE AND TO KEEP ON TASK.
ON WAKING THOMAS IS EXTREMELEY BAD TEMPERED,CLUMSY,PROVOCATIVE AND HYPERACTIVE- SO I HAVE TO GET HIM TO TAKE HIS TABLET WITHIN 5MINS OF WAKING- SO AS TO GET HIM CALMED DOWN AS QUICKLY AS POSSBLE.
IF IT WERE POSSIBLE TO GIVE HIM THE MEDICINE WHILST HE SLEPT SO THAT HE AWOE CALM THEN I WOULD...AS THIS IS THE WORST PART OF HIS DAY

i ADDED THAT THIS IS 7 DAYS A WEEK ONCE A DAY AND CAN TAKE 5MINS TO ADMINISTER- BUT THERE IS ALSO UP TO AN HOUR EACH DAY WHILST THE TABLET 'KICKS IN' WHERE I HAVE TO 'WATCH HIM ' AS HE STRUGGLES TO INTERACT WITH HIS BROTHERS.

So ....here's my email adress as if you urgently need info it will be quicker than going back through the 'contact member' stuff!
Also i now have all thomas's DLA stuff in front of me so if you ask a question i can answer that day!!!! (last week i hadn't a clue where i'd put it!)

Also by the way.....here are the reasons the DLA was awarded...as per the award notice:

care- middle rate
....because you need attention with bodily functions several times at short intervals right through the day

mobility-low rate
....becauseyou need someone to guide or supervise you when you are walking on routes that are unfamiliar.

Now personally...i am happy with the rates awarded but when i read their 'reasons' i laugh as they make it all sound so simple.....considering how much i detailed in the form....but as i said because i am happy with the award then i just 'ignore' their reasoning.

Mrs F - this is perfect timing, thank you. I received 2 bits of post today - one was the confirmation that my ds has not been awarded DLA and to say that they are aware that I have asked that they look at it again (must get evidence off - tonight!).

I also received a copy of the original forms which were sent by my FF lady. The descriptions were no where near as detailed as the copies I have seen of Thomcat's and Dottee's but very good none the less. There was also the copy of the form which was filled in from my ds' consultant and no where did she state that his road safety and personal awareness were fine - also didn't state that he self medicates. So God only knows where this came from - but I will find out, my suspicion is that it came from school and I will be seeing them about it on 2nd September!

The DLA form says in it's summing up that "C's mother is a very able but single parent who dedicates her life to his good care". I thought that was lovely. The FF lady has included most things except I wish I had said about going out and visiting friends or going to the shops which can be a nightmare. It has to be timed very well so that there are no occurances - if you get my drift.

Mrs F - you didn't include your email address, but probably better if I send you a message through Contact another talker anyway which I will do later after tea.

Thank you for sharing that with me - it is very well written and clear, where perhaps mine was not.
Speak soon. xx