My wheelchair using, ear defender wearing ds2 who has sensory processing disorder and hypermobility, who has had a blue badge from the age of 2, middle rate care from 5 months and high rate mobility from aged 3. He's had a special needs buggy from aged 2 and a wheelchair from 4. Our local playscheme won't take him unless I stay with him because he is too disabled for them to cope with.
Today I've been told over the phone that ds2 who is now 10 is no longer entitled to dla at all. I filled in the renewal forms as usual, sent them off in April, phoned up and nagged them a few times because they were taking their time over it and today they told me that a decision has been made and he's lost the whole lot. I just don't understand. He's not suddenly been cured or even slightly improved. Nothing has changed except he has got bigger so he is more difficult to manage. At least when he was 4 I could pick him up and strap him into a buggy if he went into sensory overload in the middle of the street or suddenly collapsed on the floor. Now he is 10 and we have swapped our nice easily drivable buggy for a nhs wonky shopping trolley style wheelchair. I can't take him out on my own anymore and without his blue badge and motability car i think dh is going to struggle to take him out as well. That wheelchair just isn't made for long distances so we need to be able to park very close to where we are going.
I don't know what to do. I don't know how I'm going to get him to school on Monday. The school have given us a permit to park in the staff car park because of his blue badge, I don't know if we will have to give that up too. Dla and the blue badge was helping him keep some of his freedom and now it's all gone. The person who made the decision isn't in the office today so I have to wait 3-5 days to even find out how on earth they think ds shouldn't get his dla