Hypertonic ankles

[Looobeylou]

Hello, my toddler DD has GDD, overall low tone. Amongst other issues. MRI was negative, currently awaiting tests to come back.

Her consultant recently noticed high tone to both ankles/calves. Whenever I Google this it points to cerebral palsy. Are there conditions where you can have hypertonia in both lower limbs and it not be CP? Thanks

My DD has CP and as a baby had hypertonia but when we questioned our paed he said it may or may not be relevant as tone can change up to the age of 2 years. Our DD then went from high to low tone but wasn't officially dx with CP until she was 8 years old.

I don't know about any other conditions where there is hypertonia without it being CP but maybe someone else can help here.

Hope you get some answers soon

My ds has hypertonia. Always had it since a baby - especially prevelant in calves.
Worst affected areas are his calves, hamstrings and biceps and despite clear MRI (and dx of asd) he also has a clinical working diagnosis of mild CP and takes baclofen.

He's 13! I expect his diagnosis will officially be mild CP.

I'd push for answers - mainly because it needs proper inputs from physio and OT etc.

My son has muscle contractures now and meets the threshold for surgery (he isn't having it because where he has problems with his hips it will likely make that worse).

My advice is research and arm yourself - knowledge is power. Ask questions such as "does the presence of hypertonia suggest CP". "What physio inputs could help - and would night splints or gaiters or afos benefit her".

I find getting them to explain why something isn't so is much better to get answers than waiting for them to volunteer information!