my new neighbours have 3 disabled children.......

[misdee]

and i need to prepare myself from the question dd1 is gonna ask. She knows about CP, and some other things, but the neighbours childrens are very disabled (more than the kids she knows with CP). i have spoken to their parents briefly today, but the kids werent there. I am not worried in the slightest about it, but what can i say to my dd1 when i'm not sure what the situation is myself (rare syndrome or something, mieow knows more).

anyone? i am not good at putting things like this into words. dd1 is only 4, but i'm sure she will ask why the children are in wheelchairs.

Why don't you just use the examples of the children she knows with CP and explain that they're just more affected? I tend to try to stick to things like "so and so finds such and such difficult".

The children have a very rare syndrome, so rare the syndrome was named after the family. The children got more disabled the more the parents had. Their first child is quite disabled, second very disabled and third very very disabled. I would just take it slowly with DD1 and wait for the questions. They did say their eledest child would be back yesterday, from respite, so your DD1 will meet one of them today or tomorrow. You could say they have a form of CP, just until you find out the full facts yourself.

Thats what i was thinking, but i know as time goes on, she will ask more questions. she knows that your 2 cant walk as well as her and to take it slowly, but i'm worried in case she seems 'scared' of them. their oldest is 18 isnt he?

aww misdee I am sure she wont be frightened of them she sounds like a very sensitive sensible girl (as do you) I would just try and be as truful as possible, it must be so hard for the family involved