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Here are some suggested organisations that offer expert advice on special needs.

You have to laugh!!!

8 replies

eidsvold · 04/08/2004 01:17

Went for my first consultant's visit at the hospital yesterday. Did not end up being seen by my consultant but was seen by one.

In the course of the brief consultation, the woman asked why I had been given genetic counselling after my scan - pointed to the report in front of her that mentioned the soft marker for Down syndrome. I also stated that I was at a higher risk than other women my ages as I already had dd ( in the pram beside me) with Down syndrome.....

The woman then said....

How did I know? ( cue stunned look and desparate attempt not to laugh in her face?!?!)

I kindly assured her that the neonatal paed had confirmed it on dd's birth along with the blood test which was done to determine dd's type of down syndrome...... She then blustered about the midwife not having written it in my notes... I again pointed out the T21 written next to the live birth outcome on my notes....

She also asked lots of questions about dd's heart defect and then asked if it had been repaired.... given the type of defect - one look at her tells you it has been repaired.... so one would assume a medical professional would be able to see that.

Thank goodness I do not have to go back to the hospital until 36 weeks and instead get to see my wonderful sensible GP!!

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geekgrrl · 04/08/2004 06:26

LMAO eidsvold
at least she didn't say your dd obviously only has it lightly. Makes you worry that people like that are in charge of saving lives....

katierocket · 04/08/2004 07:40

god lord, that's a bit worrying isn't it.

Twiglett · 04/08/2004 07:59

message withdrawn

misdee · 04/08/2004 08:01

And people wonder why i have lost faith in the health services.

slightlymad · 04/08/2004 08:12

My god - yes, that really is scary.
What if she had been in charge of diagnosing your dd???
One "look" told her everything was "ok".

I really do think a letter of complaint is in order here.

geekgrrl · 04/08/2004 09:38

I don't think it's that uncommon - my midwife had to really pester the paediatricians at the hospital (we saw three different ones) to test dd for DS - they all dismissed her concerns and said dd looked just like her dad and was a perfectly ordinary baby!

coppertop · 04/08/2004 09:40

OMG! I wouldn't expect the consultant to be an expert on everything but surely they are supposed to know the basics??

eidsvold · 04/08/2004 11:31

I think what happened is she just glanced at my notes and focused on what was written re: dd being born with heart defect rather than taking the time to read the whole strip of information including my emergency caesarean, and the T21. Oh well.

Sorry I think you might have misunderstood the one look comment - dd's heart defect caused her to be bloated, bluish peripherals and very bad colour.... clearly not a well babe.. post operation her colour is wonderful - pink and effused and she looks well - that is why I was stunned the doc asked had dd's heart defect been repaired.... when it is so clear that all is well by looking at her.

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