We went through something similar with my LG. On this occasion NJ feeding just didn’t agree with her, huge increase in secretions, watery bowel motions every hour, multiple vomits, oral aversion and constant retching.
Very similarly she moved over to NJ feeding because of recurrent respiratory issues due to aspiration. The respiratory issues did reduce once we had moved over to NJ feeding but it definitely felt like the ‘risk’ didn’t as we saw such a spike in vomiting and pooling of secretions.
We tried so many different options over the years. We had hyoscine patches, glycoprronium, atrovent inhaler, trihexyphendyl and Botox into the salivary gland to try and manage the excess secretions. We tried omeprazole, ranitidine, domperidone and gaviscon for reflux. All medications either had little effect or remained effective for a very short time.
Ultimately the things that proved life changing were nissens fundoplication and moving over to a blended diet through the gastrostomy button. Would fundoplication be an option here do you know?
Blended diet is not supported in every area and is controversial but there is an amazing fb group full of help, advice and stories of life changing progress.
This is what worked for us but, of course, won’t be what works for everyone. It may be that jejunostomy feeding resolves everything with a surgically placed jej.
I really hope for you and your son that you get a surgery date soon and start seeing some light at the end of the tunnel! It is horrid when they struggle so much.
Final question! Have different feeds been tried? I am positive this would have been trialled. But If he is on a whole protein feed then a peptide feed or a single amino acid feed could be easier on his digestive system?