Do you find that nobody ever calls back, that you have to do ALL the running, and does it f*ing exhaust you?

[emkana]

Because that's what it's like here.

I hate all health professionals atm. They don't give a t*ss, do they? I make endless phone calls, nobody EVER calls back.

It shouldn't be like that, is this normal?

b*gger me, exactly how I feel today! ds paed referral has either been lost in the post, or was never actually written. good job I checked up eh...

The thing is a decision has to be made about ds's medication, and it has to be made this week, and nobody cares! The GP says it's up to the consultant. Spoke to consultant's secretary - oh yes, file is on his desk, he'll be in touch. Spoke to respiratory nurse and left message - she never calls back.

aaaaaaaaaaaaaaaaaaaaaaaaaaaaargh

Yes, regularly and no one talks to anyone. One department knows nothing about the others etc... and my dd's school has the crappest communication of the lot.

This is the biggest struggle Ive faced by far......i found that no-one was calling me back so i found out email addresses and made sure I copied in all the other people involved with my son and it was only then that I really found myself getting replies.

Im sure all my sons professionals find me a slight PITA but i dont apologise for that in the slightest.

Its horrible isnt it when you feel like no-one is listening and your the only one who cares

I find it is so frustrating because it is outside of my control, ds2's consultants secretary has me sussed now, she makes sure she returns my call asap or she knows I will ring constantly & be a total PITA.
His physios office seems far more thick skinned & just keeps taking messages.
Don't let them fob you off, I hope you get some answers soon.

I just feel tonight that I haven't got the energy atm, will have to psych myself up tomorrow for another round of phone calls...

Emkana, could anyone else do the phone calls for you tomorrow, just may help ease your frustration.

Not really, dh too busy at work.

Will really have to get a grip so as not to start crying on the phone.

No, if you feel like crying go for it, sometimes it works & gets them moving. I've done it before, felt stupid afterwards but if it works don't worry

I've just got back from DS4's OT session at the CDC, whilst there I bumped into his physio and the SALT, both of whom I have left loads of messages for. They both looked suitably shamefaced (they ARE busy , I know) both ended up giving DS a quick consultation in the corridor. We have been waiting for his Piedros since before christmas.

Also about to call Pead Cons secretary for the 3rd time, she is chasing up his MRI scan appointment and report from the neurologist. It is neverending.

guess what, the GP never called back about the mysterious missing paed referral....

Apparently the consultant intended to phone me yesterday, according to his secretary, but he didn't get round to it.

Well that's all right then ey?

/pollyanna emoticon require - but did the consultant contact DS' GP about the medication, or does it not happen this way?

No he didn't I think they don't actually communicate amongst each other as a matter of principle.

I spoke to the respiratory nurse at the hospital and she advised me on the medication...

so does that mean that the respiratory nurse and consultant talk to each other occasionally??? does the GP or consultant write the prescription>

The GP writes the prescription, but the initial decision about the medication is made by the consultant.

I think the resp. nurse and the consultant talk occasionally, but I'm not entirely sure.

The whole system is a mystery to me, frankly.

it's labyrinthine isn't it? it baffled me when I saw a specialist that they decided on drugs, but didn't prescribe them. wouldn't it be nice to have a Health Visitor who sorted this sort of thing out? they seem to get far more excited over going out to do weaning talks IME.