DLA appeal

[lauramaywharton]

hi i'm new here and have a child with not yet diagnosed autism and Asperger aged 5. i have made a claim for dla but have been turned down i wrote a lengthy letter for the mandatory reconsideration which i don't think even got read. and i'm now doing an appeal but i feel like i should give up on this. i just feel tired and sad every time have to do these forms. all i know is what i go through everyday with him can't be part of a normal 5 year old like they are trying to tell me. if it is then i guess i'm a rubbish mum as other people have more then one kid and cope why am i finding it so hard. i don't know what to do and i have no one to ask or even talk to. is anyone else feeling the same or have had similar stories. or even success story's with an appeal. id appreciate it right now .

I'm just at the start of the dla process. It's taking forever to fill in.

I can only imagine how tough it must be to be turned down after you have poured your heart out.

Really hope you get a good result at the appeal.

Hi!

It will probably be easier if you actually have a diagnosis to support the claim.

go to your local childrens centre and ask for advice they may be able to put you in touch with a support worker x

Had everyone I'm new at this as well. Iv been waiting for the outcome on my mandatory reconsideration for two weeks don't know if that's a good sign. Has anyone has there decision over turned recently. My danghter has been diagnosed with epilepsy and is on meds 2 time a day.

I think you’d have more chance with an actual diagnosis. We sent all letters from the assessment and the statement stating DS was diagnosed with autism. They processed it in 4 weeks.

Fingers crossed. She has been diagnosed with generalized epilepsy. Hopefully hear soon

The issue will be if your child's needs are significantly different to their peer group for example a 5yo who needs help feeding themselves isn't as significant as a 10yo who needs help feeding themselves. You may need to wait for a diagnosis or for the gap between your child and their peer group to widen more significantly.

Had this problem also! We had an adhd diagnosis but autism referal was still in process. They told me a diagnosis did not didnt qualify dla automatically yet said some of what i said was not in line with an adhd diagnosis.. which would be because some of it was autism related.. we have appeal this week and got autism diagnosis last week so will be interesting to see if diagnosis has an impact while they said it didnt 🤔 i also felt my MR lengthy letter was not read or referred to when turning it down. I hope you all got sorted 🤞😊