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DS1 had his appt today with Motor Co-ordination clinic-SORRY LONG RANT!!!!!!!

9 replies

jambuttie · 24/04/2007 20:12

Hi all

Not really sure what to write here but will just try and fire away.

DS1 has always been a very "bendy" boy. After a visit to neurology a few months back he had requested that DS1 attend the motor co-ordination clinic.

I was unsure as to what this clinic was having never heard of it before now. School had also reported to us on how tired ds1 had been in class since he started school, how his concentration was poor, struggled to use scissors but they gave him training scissors, we knew nothing about the scissors until a few weeks back at parents evening.

Anyway we went along today and there was a physio and 2 OT's present to carry out the assessment.

They done a range of tests on him, ranging from writing, putting coins in a box, throwing and catching, balance, stand on 1 leg to name a few

They sat with me at the end to go over their findings. DS1 has to attend OT groups at the hospital- these dates will follow onto us when the next block of groups start(expected to be end july), OT will visit the school to discuss with them ways in which to make ds1 days better at school and more manageable. They will take along an angle board for him to use at his desk, dicuss ways they can help with his pencil grip(grips they used in clinic were not comfortable for him).

Physio will start with him too however they have said they will wait until he starts at a local group to help with building him up and working on his extremely poor tone. They said they need to make his hands stronger as they are so week with little power too.His trunk muscles aren't the greatest either. They will send him to a group after the summer holidays that will help him ride a bike which he cant do either.

I informed them that dyspraxia had been mentioned to us from the neurology team aswell as H.V etc and could this be the case with ds1?????

OT kinda looked at physio and went on t say that many years ago children had to be really really bad for dyspraxia to be picked up on( going back about 20 yrs she said) however medicine today has changed and they are able to pick up on things that were probably not picked up on before[hmmm], this did not answer my question at all so I asked again!!!!!

Her answer was YES!!!! Although we had our suspisions when they said yes I felt so sick and wanted to just cuddle him. Now I know it ain't the end of the world and they can work on him to imrprove hi poor tone etc but ds1 was my only "Normal"(excuse the pun, no offence meant here)child. I also have 3 yr old twin boys, DT1 has behavioural issues which are currently under investigation, DT2 has global development delay, joint hypotonia, gastro oesofegus reflux, very poor muscle tone.

Thanks for listening to my long rant, any information you can give me will be gratefully appreciated.

TIA

Jambuttie
x

OP posts:
jambuttie · 24/04/2007 21:15

BUMP??????

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onlyjoking9329 · 24/04/2007 22:22

didn't want you to feel ignored, sounds like you have had a stressful day and i do know what you mean about normal!
can't offer any advice. we only do autism in this house

mymatemax · 24/04/2007 22:29

Jambuttie
Sorry you've had such a bad day, not the answer you wanted but at least he will get all the help he needs.
DS2 attends weekly OT preschool group & loves it, so much so he doesn't want to go to his "normal" playgroup. They have set some really useful exercises for home & we have seen a big improvement.

Julia76 · 24/04/2007 23:18

Hi Jambuttie,
I know how you feel as ive been in your position.My son has dcd and he has ot and pt to complete at school and a home exercise programme also. Sometimes you need to have a rant or just to feel you are not on your own. If you want to to exchange info, advice, or such like, you can contact me on [email protected]. x

jambuttie · 25/04/2007 08:10

Thanks folks for your messages.

Julia may just take you up on the offer hun

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Julia76 · 25/04/2007 10:48

Like i said Jambutie, we all need a rant sometimes and the need to talk to someone. I know i do. anyway,offers there. take care

coppertop · 25/04/2007 13:34

I'm so sorry, Jambuttie.

Parts of your description of your ds1 sound similar to my ds1.There's a lot that can bE done to help but obviously that doesn't make it feel any better. xxx

Aloha · 25/04/2007 16:24

My ds has dcd (along with Aspergers) and I suspect I probably had/have it too! But honestly, it really isn't the end of the world. There is a great, inspiring book called Caged in Chaos by Vicky Biggs, a teenage girl with severe dyspraxia, who also happened to get the highest marks in the country for her English A levels and is now studying at Cambridge. She's so dyspraxic she sometimes falls over just walking along and falls off chairs a lot. I have no hand to eye coordination whatsoever, can be easily outrun by most four year olds, knock things over a lot, blah blah, but I'm bendy and good at yoga and pilates and have many other non-physical skills. Normal? Schnormal!

jambuttie · 25/04/2007 19:52

Thanx again for your kind words folks.

I do feel a bit better today about it all, I have googled also today and feel at ease. At least I now know he can achieve so much even if there are difficult things thrown at him

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