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Social communication issues

10 replies

Grrrrlife · 10/12/2017 18:38

Just after some advice as my heart is breaking.

My ds is in reception. We've thought adhd for about a year and he's struggled to settle and school have confirmed they think traits but SENCO not fully convinced as he can concentrate and he is bright and attentive. Our recent observation is that he's desperate for a close friend but totally overwhelms other children by following then and suffocating them. Kids are picking up on this and some are now manipulating him and I would say bullying him and getting him into trouble. We now realise this was his problem at nursery. He's an extreme extrovert and prone to meltdowns. To other parents he looks ill disciplined. Other parents are being spiteful about him and about us.... he's starting to feel excluded and isolated which is making behaviour worse. He demands a lot of attention from everyone all the time...we find it exhausting!. We are thinking of paying for some kind of social communication training (does this exist??). School are supportive generally but no actisl help.. but this just feels like it's ramping up. We've been shocked how horrible other parents have been to him at parties and behind his back.... to give context we live in.an affluent village and we are a same sex couple (this is quite outing!) and there seems to be a hate campaign against him and us. Help! Where do we go from here. We are thinking of moving back to urban area... but this means leaving understanding school.
Any advice you can give please?

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lavender20 · 10/12/2017 22:23

Not really much advice just wanted to say I am in a similar boat with my daughter and I've definitely had a hurty heart day as I call them. She's 3 in a few months, speech delayed (however words are coming now quickly now but not pronounced very well.) And her communication/interaction with others she isn't very close to is odd. I wouldn't say shy in the traditional sense, just unusual. Which I feel gets in the way of playdates and making friends. I don't always know how to act to support her in the moment and my heart breaks for her.

Sorry to hijack your thread with my sob story, just needed to vent and also tell you you aren't alone in how you feel Flowers

Grrrrlife · 11/12/2017 06:36

Thank you, and sorry to hear that. It's just so sad to see them want to make friends but unable to. It's like a cycle.
I hope you get the support you all need soon. I will be thinking of you.

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Marshmallow09er · 11/12/2017 07:58

Hi Grrrrlife

Thanks to you.

You can go to your GP / HV with yours and school's concerns and asked to be referred to a development paediatrician.

Whilst a SENCO's knowledge of SEND can be more than most teachers, they definitely can't diagnose (for a long time our first SENCO kept telling me DS wasn't autistic - he's 9 now, is very clearly autistic and has an EHCP and full time 1-2-1 at school).

Whilst you describe the school as sympathetic, kindness only goes so far and what you really need is proactive strategies putting in place to help your DS.
This can be done straight away and without any diagnosis.
He can have an IEP set up with SMART targets and strategies they will use to support him.
They should be trying to identify triggers - keeping a record of all incidents, what led up to them and then work out what could help.

What I wish I'd known from the start is that no one else ever takes the lead on this - the school rarely does - it is mostly us parents who have hold them to account.

With regards to other parents - it can be tough. My experience is early on we weeded out the ones like you describe (my DS frequently lashed out at other children).
There will be some supportive ones there too.
I've had lots of support from other parents of children with SEND at the same school as DS.

Be led by your DS - we have had success in some friendships outside of school rather than in (as contact us then always supervised by me and can kept positive).
DS hates groups or team activities - he's much better 1 on 1 with another child on a short activity.
He doesn't go to many parties or get invited to the stuff like Halloween but he's ok with that as it makes him anxious anyway.

Marshmallow09er · 11/12/2017 08:02

Oh - you can also ask for SLT input - I'm not sure if a GP can refer - but development paediatricians can.

Be aware all of this process takes a long time as waiting lists are long. You could consider private SLT - the trouble is that any input down externally will only have limited impact as what you really need is the support to be led by school. They need to be assisting your DS to ensure he doesn't overwhelm potential friends (so many don't small group work / circle of friends type activities that are supervised by an adult, so the other children are sharing positive interactions with him)

Marshmallow09er · 11/12/2017 08:35

(Oh sorry about all the autocorrect spelling mistakes above - was rushing. Hopefully you can still decipher my meaning!)

knittingwithnettles · 11/12/2017 09:19

ds2 was very like this. He used to sit on people he liked Shock. He luckily had a twin sister and this mopped up the social side a bit,at home.

Ds was actually very lovely1:1 and very empathetic, and could play very nicely with one child at a time.

My view is that the school environment was quite overwhelming for him in many ways and this was the reason for his meltdowns, although he found it stimulating and fun too. He liked the rules and the organised playing but he found the free play the difficult bit. He found drama group or reading or talking (ie reading aloud) or answering questions a very enjoyable part of school, but he just could not cope with the social interaction when it was based on some unspoken rules that he had not mastered.

However, all is not lost. There are many options. Firstly I reduced ds's stress levels down by keeping him at a half day throughout most of Reception, he really struggled to cope for a full day. (People will tell you this is illegal and school should cope but I preferred that ds should enjoy school and be calm and happy to this principle) By Year 1 he was much better at sitting still and coping with less adult attention, the extra attention he got from being 1:1 massively benefitted him imho. He used to play very nicely byhimself when he got home on those half days, he was really no trouble at all, considering he was meant to be adhd/meltdowny. The environment made the difference to his stress levels/reactions.

Secondly, when things got much worse (he was by this point 9/10) he still enjoyed school,rules, activities,sport, but his ability to communicate socially was not being helped by being in school at all. He was singled out as odd and weird, pet of teachers but avoided by other children, social life collapsing, not invited to parties. When I made the life changing decision to home educate him, his social life became much much better, and he still has friends fromthat period, now that he is back in school. I can only think that again, the environment and the ability to tailor things to his needs, and to increase the chance of him successfully learning some 1:1 skills or 1:2 skills made the difference to his emotional state and his ability to cope with stressors/read the cues of other people.

Those who think children can only socialise if they go to school should think again, often home ed can be a chance to meet some much more INCLUSIVE families that put socialising at the heart of their child's educational experience.

To sum up, social communication skills are slowly developed, and with some children with ASD or ADHD they need a bit more nurturing, environments can help far more than therapies. Ds2 is 15 now, independent thriving extrovert lots of interests, drama gsce, hard working. I cried many tears when he was between age of 7 and 12 over social ostracism and his own failure to perceive how to communicate with his peers, but things are so much better now. For developmental reasons and because there was INPUT (and that input means, knowledgeable nurturing school, EHCP (we only got this at 14), and occasions for socialisation outside school)

knittingwithnettles · 11/12/2017 09:22

Oh yes, ds is back in school since end of Year 9, 100 percent attendance and on course for 8 GSCES at 5's and above including some 7's.

knittingwithnettles · 11/12/2017 09:24

Ds hated halloween, too impatient to wait outside houses etc. This year he was the one to open the door to all the children who came by and tell them their costume was great/scary, and give them sweets. His social communication has improved so much. Love and nurture do make an enormous difference, but it takes time and certainly a bit of heartbreak on the way.

knittingwithnettles · 11/12/2017 09:28

There's also an excellent book called The Out Of Synch Child. and The......has Fun. A lot of ds's needs were sensory (google sensory diet, which is not a real diet, more like a programme of activities/adaptations - ie weighted blanket, trampoline) He has grown out of a lot of more extreme manifestations, ie fear of showers, fear of textures, fear of tomato sauce!!!! He used to be obsessed by dust for example, now he happilysleeps in a verydusty room (he is meant to hoover it himself but doesn't worry too much)

Grrrrlife · 11/12/2017 10:50

Thank you everyone. Those stories reassured me and you have some helpful tips. I'm just realising this is the long road...so expect I'll be back with more questions soon. Best wishes

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