Just wondering how to approach a first appointment with the paediatricians. It is for dd. From Dr Google I am fairly sure that I know the likely diagnosis (EDS hypermobility) - meets I think enough criteria and I am still somewhat hypermobile plus bringing ds (as at end of school day) who is very bendy so will tick the hypermobile FDR. There are a number of other conditions which are associated with it too, which she also has although no NHS diagnosis (e.g. visual stress, spd) in addition to the core diagnostic features. I think that it might be easier for school if we say she has x which explains a, b and c. Will it be muddying the waters to discuss the associated conditions or should we stick to the core diagnostic features?
Should I go in saying that I think it is EDS based on Dr Google my 'research' or should I wait to see if it is pulled out of the hat? Or I could say that I was told my similar issues were probably 'just hypermobility' so I guess hers are too. It seems much more defined now.
Our key concern is the pain and accidents. Should I also bring in all the school issues (handwriting etc)? Should I ask about the other referrals which I think would be useful? It is to a general clinic not a specialist service because GP also wants other possible causes rulled out. Basically how passive/ active/ knowledgeable should I be?