Wrong private autism diagnosis

[Stripeyunicorn]

Just wondering if anyone ever got a wrong private autism diagnosis i.e. Dc being diagnosed on the spectrum and later turned out to be speech delayed

Had wrong nhs diagnosis and hoping private one was correct

Waitingforsleep the NHS said your dc was on the spectrum and you got a different private diagnosis? I have 2 different private diagnosis and don't know what to do

Oh no! Nhs said anxiety but private says ADHD
How come you had two private dx?

Anxiety has never felt right for dd

Just wanted to get a second opinion to be sure and now ended up with 2 different results

What is the diagnoses with neruoloical traits lots of things overlap, its not always easy to decide the best fit.

One diagnosis is isolated speech delay which apparently is common for boys and the other one is ASD. Both doctors have seen my son only for 1 hour. Nursery has not been consulted. It's very confusing, but I guess all I can do is get on the list for NHS assessment and in the meantime get my ds all the help he needs. I was really curious to know if anyone else has any experience with this type of situation

Autism is diagnosed when someone has debilitating impairments in 3 areas, communication, social interaction and imagination.
it is possoble to have both ASD and speech delay.

Yes you are right, we definitely have the speech delay but doctors can't agree if it's more than just that

What other assessments were done? We saw the private dr for two hours but she had all of our reports in advance to go over.. Had Ados, sensory, ot, ep reports etc..
Did they do the Ados ?

A diagnosis is never a truth, but a best guess. It's possible that it is incorrect. You don't have to accept it or declare it, - or you can ask for a wait and see approach and a further assessment in 6 months.

My son has a diagnosis of Expressive Language Disorder, ASD and ADHD. All diagnosed separately. All correct in my opinion.

privately, everybody involved had DD down as speech delayed. NHS DX of autism and s&l impairment. both are right and one doesn't exclude the other. Speech delay is a communication day which is often part of the bigger ASD picture. Doesn't always have to be one or the others. I know in fact a number of children who started off with speech/developmental delay who went on to get an ASD DX later on (my DD too).

now that DD is older the Asd is bleeding obvious though.

How old is your DC (or was at the age of DX)?

also surprised you have been dx so quickly. we had months of observation, assessments of all kind and in the end were diagnosed via ADOS.

My DS is 2.5. I know that both go hand in hand, the only confusing thing though is that one private ped said it was a speech delay common for boys and would resolve itself and the other one said it's ASD. He has been in nursery for a year now and they never flagged anything. Still I feel I can't just wait and see but need to start therapy and get on the list for NHS dx which is a proper assessment process and not just 1 hour of observation.

He's very young, it makes pinning things down a lot harder.

2.5 ist very young. Our area doesn't diagnose under 3 at all. I know in the US e.g they diagnose a kit younger than 3 but seeing someone for an hour with a 2 year old, no assessment whatsover and walking away with a ASD diagnosis? in an hour you cannot even go in detail through the developmental history, let alone observe, assess.

I am pretty shocked tbh and would certainly take it with a pinch of salt. just wait and see what the NHS process brings.

I think it may be also useful for you to u understand that at 2, doctors may not be able to give you a firm dx after a 1h consultation esp if the line between speech delay and ASD is blurred.

there is no point forking out £££ to get things confirmed either way. I understand you seeking certainty (I have been there) but it is not always that easy and even though you have a dx of ASD and/or speech delay, it still won't tell you what the future holds.I found it painful to let go having this clarity but once I got there, things got a bit easier for me.

Thank you for all the great advice, makes me feel much better. And I think you are right instead of chasing labels I should focus my energy and £££ on improving things for DS.

Hi stripey - my older one had 2 diagnoses - private said no asd, nhs said - yes asd. Irrespective I knew something was up....started aba

So it does happen sometimes. I am planning on doing the same

We had an nhs asd diagnosis taken away.
On reassessment (again nhs) the paed said the behaviours that they saw that got dc diagnosed (5 years ago) were most likely secondary symptoms of salt delay. (But we do have a very clear diagnosed cause of the salt delay).

If anything I would say wait for the NHS assessment, and if you feel you need to do something focus on speech and communication.

Thank you Frusso. Did you get the SALT delay under control?

Dc can certain communicate effectively now stripey, not age appropriately, but enough that dc is less frustrated, so behaviour has improved tremendously, and dc can socialise with peers.

Frusso really ?!! How did you feel when they took the ASD diagnosis away.

Honestly OP, I wouldn't fork out more £££ to confirm a diagnosis or not... wait for the NHS. Use the money for private therapy instead.

notgiving yup.
Although it's not as straight cut as it sounds. There's other SNs that dc has, that can present with similar behaviours, in all 3 areas of the triad, but the older dc has got, and now communication is improving, the more clear it has become that asd isn't one of them.
So i guess in a way I'm relieved that paed/salts agreed with me, and equally, slightly miffed with myself (not them, I chased the dx in the 1st place) that I focused on the wrong dx.

I have another dc with ASD (aspergers) only dx because the paed who monitored the other advised us to get a referral whose dx totally fits absolutely without question.

The thing is