i would echo what you have said about complaining and kicking up a huge fuss as i have twice.
DS out of school for 18 months taught by LEA in our home, SLT-cant do anything with him, as he,s not in school, advise that you get back in touch when he goes back in, cue very angry letter to head of SLT accusing them of discharing DS cos he isnt in school due to his disability and that is discrimination, we now have 2 SLT,s that are going to work with DS one of whom is a specialist in ASD,s.
2nd time re DD, not taking our concerns about her seriously, cue another letter to same head, copied in to Paed accusing them of discriminating against dd cos she,s under PAED from another authority, which is what happened, now she has just had an asessment by specialist SLT and has been referred to ICAN who will go into nursery and work with her once a week IF they agree to take her and if they dont WATCH THIS SPACE.
Its awful that we have to complain, we have a bout 6/7 different letters going back and forth between various NHS and LEA depts as both our kids have speech problems, but complaining does get results