spent last night in Booth Hall hospital with DD.
She had her SATS done, she kicked off big style, i had to phone DH to come back at 10.00pm cos it had taken me and 2 nurses over half an hour and we hadnt managed to get her to calm down to have the probe on her toe.
She was wearing her pink headphones and saying "too noisy, dont like doctor".
So in walks DH, promises her a new sand pit if she lets them put the probe on and 10 mins later she,s fast asleep!!!!!!
Her oxygen levels are ok and her heart beat, thats because her usual consultant got a letter from Booth Hall telling him they werent happy and he completely changed all her medications last friday, she,s been on steroid tablets/powder and an orange inhaler, the consultant rolled his eyes this morning when i told him what the other one had done, if that had been done a while ago there would not have been any need for her SATS to be done and she wouldnt have had sleep apnea as bad as she has had.
They still want to test her for CF, they are concerned because she always has chest infections that clear up with antibiotics so we are waiting an appointment for a sweat test, also they ahve took blood as they said that a lot of children with ASD have problems with their immune systems.
So i came home and cried with relief (i know im a softy!!!) cos its been awful watching her struggling for breath.
We were on the CF ward, i am amazed at the courage of the kids on there, they stay for 2/3 weeks every 2 months and have daily, IV,s physio etc.