What does your little one do that you were told they probably wouldn't....?

[lourobert]

My son (17 months dx with Infanitle spasms at 5 months and WIlliams at 8 months) just seems to be coming on leaps and bounds at the moment which is fantastic.

Last night he was sat laying back on my knees when I was sat on the floor he pushed his feet on my belly and propelled himself backwards- i was so shocked cos I didnt expect it and I didnt think his legs were particularly strong. I then held him and put his feet on the floor and he pushed his feet into the floor and stood up tall- the consultant we saw the other day told us he would never weight bear.....and here he was weight bearing for at least 3 seconds and he was doing it time after time after time.

Im so excited- iknow its only a small thing but it finally seems like weve got things to cmile about- hes progressing....!

When my son was first dx with IS we were told he ill never walk and talk- that thought sticks with me. My parents are more optimistic (or at least they are when talking to me!) but the doc saynig that plays in my mind over and over.

Well, now he have a little bit of hope that we could prove the doc's wrong....!

sit, crawl, walk, talk and is even beginning to learn a few letters (she is 5)

We were told at 8 months of age that if she survived she would be severly brain damaged!

When she was very ill again back in July, we got a follow up appointment with the Neuro at Alder Hey (he was the one who told us how badly brain damaged she would be)

He was gobsmacked!! He just stood there looking at her and laughing as he couldn't belive it

we got a lovely letter off him a week later saying how brilliant it had been to see Ellie like that!!

Thats not a little thing lourobert that you said about, its a huge thing I am so pleased you are seeing him progress

Hope What I have said encourages you somewhat. Ellie so nearly dies, The Meningitis she had was so severe, all the seizures, then the Hydrocephalus then IS! Couldn't get much worse!

Always have some hope lourobert, they are not always right

sorry, meant Ellie nearly died, not nearly dies !!

and sorry I waffled!!

Its not waffle it always so encouraging to hear all the things thats Ellie is doing......! HOw nice that you got a letter from that neuro- she obviously touched him and left her mark.

Suddenly Im starting to feel a little bit excited abot the future. Scared to let myself get excited though....!

I am a very negative person, so I always expect the worst

Not always good living like that but then I have never expected anything so its been so fantastic when she does things!

As you said you are too scared to get to excited, but being a bit optamistic is good!

You just don't know what your DS will be able to achieve

When I worry so much about the future, everyone has always had to remind me how young Ellie is!

You just never know I suppose

I am very waffly tonight lol

walk!!!!!!!!!!!!! we were told that he would never walk and that he would have extreme difficulty with talking however, he is now able to say 10 very or sort of ledgible words and also walk however unsteady he appears.

whats the saying???

God loves a tryer???

I now rephrase that to>>>>

God loves a de-fyer!!!!!!!!!!!

What ever they acheive in life is a goal in its self. xxx

take care,

Butty.xxx

C isn't a vegetable and can see and hear. The docs said she would be a vegetable. She does have severe CP and can't move anything but she is bright and undertsants. Despite Infantile spasms at 3 months of age. So :-p on doctors!

Dance!

The sonographer told us at the 20 week scan 'the baby will never dance or be a footballer'....you should see my boy dance! (and the football is coming along v slowly!)

Well today ds1 had steamed salmon for lunch with cauliflower and roast dinner (more cauliflowers as well) for tea. I wasn't told he would never do that but after 5 years of just gluten free bread I never thought he would. He's also imitating and produced his first Makaton sign aged nearly 8.

Talk!!!!!
Well, if you count saying 'more', 'there' and 'pat' as speach then hallelujah praise the lord!!!
(not bad considering he has absolutely no 'speach centre' in his brain left at all )

We were told ds2 may not survive...
after he started walking his physio told us when she first met him she didn't think he would ever walk as he had no head movement/use of arms & was just a totally floppy & unresponsive baby...
He can walk, run (sort of) & climb, usually so he can reach the windows to give them a lick!
Doctors aren't always right all these little steps in the right direction are big achievements.

Socci- you definatly right about the smalls things paving the way for bigger things to come.

Ive loved reading all your posts about the defiance and determination that your children have shown.

Only over the weekend my little boy was laying on the floor (where he spends most of his time) when my dad put status quo on...Louis started moving to the music- it was defnaite controlled movements and he was really smiling.

We will defy that doctor that told us he will never walk or talk.

Magsi I definatley count those words as speech- and you say he has no speech centre.

To hear about all your little ones is such encouragement, to hear about them dancing playing football (god, that is my dp's dream- to be able to kick a ball with my ds!),walking, drinking from sippy cups.

Our kids are amazing arn't they!

Talk! DS2 said 'time go home?' yesterday. His first ever three word phrase! (Still feel superstitious writing it though).

Mind you, steamed salmon and cauliflower....
Saying Mummy and Daddy...

I live in hope!!