Took DD to Royal Manchester childrens hospital to see a specialist for her problems with her chest.
When we got there we discovered we were in the Cystic Fibrosis unit which freaked me out.
The Paed said he wants her in overnight to monitor her heart rate,oxygen levels and that he wants to do a sweat test and an immune difiency test (or something like that, i switched off after he said sweat test).
He said he is very concerned because she stops breathing at night.
Then...........we had to go and see her allergy specialist, he deals with her eczema and asthma as well.
He has now put her on steroids, a powder to go in her drink (not movicol something else beginning with m for her chest) some strong tablets to help with her secretions, and he,s put her on an orange inhaler called flux-i-something or other.
And, her legs are covered in red rings, he said this is infected eczema and i asked him what had caused it and he said she,s had so much antibiotics in the last few months that her system is producing antibodies and one of the side effects are these rings.
She,s now on strong cream to be applied to her legs twice a day for that.
And then, when i got home theres a letter from the Audiologist to say she wants to see us and DD, 6 months ago she said she thought that DD needed grommits and would see us in 6 months to discuss it.
(ive pushed that to the back of my mind)
And, next week she has an appointment back at the childrens hospital cos they want her to have her tonsils out AND the SALT rang and asked me could she do a home visit as they want to do another asessment on DD.
They were supposed to provide the CDC with a copy of the asessment done back in Dec but havent and obviously have lost the paperwork.
So ive come upstairs for a good cry cos its not fair, DD has got everything going CP,ASD,Speech problems,chest/asthma/eczema/hearing problems. and i cant take it anymore and i feel like im drowning and i just wanted to come on here and talk to my friends about it .