Ds2 got DLA and I'm sad

[OhHolyFuck]

Is this normal, to feel upset that it's some confirmation of him being 'disabled'? I see him as my beautiful little boy but it's starting to hit home more and more how much he's going to struggle

Yes I think it's normal - does the sadness ever go?

I don't know, I don't know what the future will hold which is the really scary bit

I agree - it's terrifying

I think it's normal, my DD was awarded DLA almost a year ago and I still feel like this, and the unfairness, I hate it. I have good days and bad days.

Do you want to talk about your DS?

It's perfectly normal I think, my 16 yr old daughter was awarded PIP a week ago at enhanced rates for both parts and it hit me really hard as up until xmas last year she was a perfectly healthy 15 yr old.
It confirms your fears and as I'm in denial it comes as a massive shock.

Thanks overtired, I've just been at his 'induction to reception' meeting and seeing all these 'normal' 4 year olds, I'm terrified of how he's going to transition to, and cope with, school. Even nursery has been a long hard slog.
But he's gorgeous and cheeky and makes me laugh every day. Right now he's dancing to and singing the Baby Jake theme song to make his brother laugh when he should be sleeping

He sounds happy and very cheeky and loves his family is he excited to be starting school? You sound a brilliant, loving mum, your feelings are natural, all I would say is don't be frightened to talk about yours fears.

My DD is 2 next week. Made a massive achievement tonight of sitting up unaided and was so proud of herself. The fear of not knowing what she'll achieve is awful, but she's happy, contented and so cheeky!

Totally normal I think. He sounds like a happy little boy and that's the main thing.

We applied for DD2 a few weeks ago and although we haven't had a decision yet I feel the same. She has also been accepted for the local SN school nursery when she turns 2 in a few months and I am so sad about that. Glad the help is there and that she will received it but pretty devastated she needs it in the first place.

Thanks everyone, it helps to know I'm not 'weird' in feeling like this - again, I'm so thankful for the support (it means I can get special school uniform, taxis on the days walking there isn't going to happen etc) but I wish we didn't need it

tired he doesn't understand he's moving to reception yet, hence some of the apprehension. Nursery/school are going to do lots of transition work and we'll reinforce that at home too, and then just cross everything it doesn't go too awfully and freak him out too much

Holy what is DS diagnosis if you don't mind me asking?

DD has a rare genetic condition